Hi everyone.
I was diagnosed with prostrate cancer type T3b 2 months ago and was started on hormone therapy 2 weeks of Bictulamide tablets after 3 days of the tablets I was given prostap3 injection,around 4 days after the injection I started feeling pain in my legs even walking from my lounge to my kitchen felt like I had walked up a steep hill and on the fith day I experienced shortness of breath even walking any short distance on the 6th day I tried to do some housework and became very short of breath and the pains in my leg where so excruciating I had to sit down, I became concerned and called 111 NHS 24.
I explained what had happened and that I had just started prostap3 injection for prostrate cancer, the nurse took my details and said a clinician would call Me, around 10 minutes later a doctor from my local out of hours called me and told me due to my concerning symptoms he would arrange an emergency ambulance to take me to hospital as he was worried that I might have a blood clot in my lungs and told me that prostap3 can cause this, needless to say I was worried too!!
I arrived at hospital and was taken to a ward after a short spell in A&E.
I spent two days in hospital while they done some tests bloods, xrays and ct scan fortunately everything came back clear no blood clot.
I was discharged and I called my cancer nurse to explain what had happened and she told me that my symptoms where not due to the prostap3 injection, I felt like the cancer nurse was just playing things down and that left me feeling so confused and upset.
I would like to know if anyone has had a similar experience with prostap3 injection or if anyone feels that their cancer nurse plays things down when they report side effects of prostap3 injection???
I have been admitted to hospital another 3 occasions since receiving prostap3 injection . I will post more about these admissions later but what I will say is each time I've been admitted to hospital I have contacted my cancer nurse and each time she has told me my admissions to hospital where nothing to do with prostap3 injection.
I just feel so upset and alone .
Hello Vmc
A warm welcome to the online Prostate group although I am so sorry to find you joining us.
Prostat3 side effects can all be found in the PIL (Patient Information Leaflet) and these are to be found here:
Not many people read them or the cautions when you are taking other medication which may lead to a medication clash.
My thoughts here are that you have had a 3 month injection of Prostap - you will have to put up with this now but for your next Hormone injection ask to switch medication. I have been on Decapeptyl for the last 3.75 years and although I have had the usual side effects - mothing major.
If you speak to your team well before your next injection is due they should be able to help with this.
It would help us to help you if you can add your journey details up to now to your profile. To do this on your home page click on the computer screen - top left, then profile then edit - once you have written something remember to save it. Your full diagnosis, Gleason, TNM and PSA would be a great help. (You can read someone's profile by clicking on their name or avatar).
I hope the above helps and gives you some reassurance.
Best wishes - Brian.
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