I haven’t been on this page for a while. Since my husband’s recent discharge from hospital we hoped things would settle down for at least a few months.
His PSA has dropped to 2 which the oncologist said is good. Unfortunately the lymphoma has decided not to play the game and he has sore oozing spots on his legs again. His recent hospital admission was for cellulitis and build up of fluid in his lungs. He has only been home for four weeks and we fear a reoccurrence of the infection. I called DN’s on Friday, they visited on Saturday and said because his legs were not too hot not to worry but to keep an eye on them. That’s not much help to the untrained carer/wife. I will phone GP in the morning in the hope of getting a second opinion.
my husband is afraid of going back to hospital and I don’t want him to go. Our local hospital is very overcrowded and although they do a fantastic job with patients it’s not the most welcoming and caring place to stay. The food is awful and staff are overstretched. Beside all that doctors have said there isn’t much more they can do for my husband other than make him comfortable. I am so scared and anxious about what I know is the inevitable outcome of all this. Just needed to say this to people who have been through this ordeal or similar.
Hello Teatowel
It's nice to hear from you again but not under these circumstances.
I agree with you that home looks to be the best place for your husband.
. I am so scared and anxious about what I know is the inevitable outcome of all this.
It's natural to feel that way and make sure you take time to have for yourself - you can't be there 24 hours a day.
Are you and your husband getting all the support you require both in person and financially? When you have half and hour please do check in with the Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) to ensure you are receiving the support and benefits you are both entitled to.
Stick with us - keep talking to us - this is the place to vent - we know what you are going through and are here for you.
Kind regard - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello Jenny (Teatowel)
Thank you for your lovely post - it's not just me - we are a team here and are all behind you and your husband
Dear Millibob,
thank you for your ceaseless encouragement and support. You are an amazing human to so much empathy for strangers. Thank you.
we are financially ok and our hospice has, only this week, offered me support from their psychology department. My husband has been having home visits from them for a while. I talked to our GP today who has prescribed a course of antibiotics. The GP representing the ‘gold standard’ of cancer care will come to see my husband on Wednesday this week. That’s the day I go for a CT angiogram to see if I have angina…I have told my husband I’m going for a bone scan…he is used to me doing that so isn’t stressing about it. If I told him the real reason for the scan he would go into a major panic about who will look after him if I am not well. He is very focused on having his own needs met…understandably in his situation.
Thank you again for always being there. I hope you are doing well..with much love and appreciation Jenny
and any one else suffering from this cancer.
I have been on the group 4.5 years (almost 3 as a Community Champion) and hope to be here much longer - I am still between being on a "curative pathway" and falling off the fence not being curable. The support I have had on my personal journey from the group has been immense and I know from personal experience what it's like in those "dark days".
We are here for you and your husband. I hope the CT scan goes well and that your husband continues to improve with the care he is now receiving.
Kind Regards - Brian x
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
