New Patient and Don't Know What to Do

Hi Gyver65 and welcome.

Well if U  really can't have radiotherapy cos the drug u are on  then surgery is probably the way forward, your stats are not particularly high so should be ok.

Otherwise check with someone in Radiology, see what they say.

Best wishes 

Steve 

Were you offered active surveillance?

You have a very low grade cancer - indeed in some places a Gleason 6 is not considered cancer at all. It is likely to proceed very slowly indeed and in some cases you may not need treatment ever.

I also looked at the information about the drug Velsipity from its manufacturers. You can find what I read here:

https://www.velsipity.com/why-velsipity/side-effects-and-safety

It does not mention radiotherapy. It DOES mention skin cancer and taking precautions against UV radiation that is in sunlight.

You need an expert to advise you on this - so not me.

You can call Macmillan's Cancer Specialists on 0808 808 0000 from 08:00 to 20:00 7 days per week. They will be able to offer you more effective guidance and scientific basis than anyone here.

A prostatectomy is significant surgery and should not be undertaken without considering all the options available.

Let us know how you get on with your review.

Thank you so much!

No, I was not offered active surveillance.  Thank you so much for your input.  This really helps.  I definitely need to get some expert guidance before I just jump into the surgery.

You really need to do some research on your options before going ahead with surgery, I have gleeson 6 and higher psa than you 10.3 and I’ve just been advised by my consultant to stay on A/S which I have been on for 4 years. 

Hope this helps 

Roy

Thank you so much for your input.  I did a lot of research over the weekend and decided to cancel my surgery.  My urologist is a surgeon and I could tell he was pushing it pretty hard.  I’m currently looking for a new one.

Hi gyver65 Like others on this forum I have no medical knowledge, just the experience of a cancer diagnosis and subsequent treatment.

However, for what my opinion is worth, I think you have done the right thing in at least postponing your treatment to do some more research.
I note your comments about your consultant seeming to push the surgery option, that is the exact opposite to mine at the same stage although he too was a surgeon. He forcefully instructed me and my wife to go away and discuss the options taking any advice and research that we cared to do. Then let the hospital know the outcome of our deliberations.

You are welcome to read my journey through the past three years in my profile by clicking on my avatar above, you will see that my numbers are just a little higher than yours. There have been trying times during these years but I don't regret my decision in the least.

Rod

Thank you so much for sharing your journey!  I really enjoyed reading it.  It was so detailed and informative.