Radiation cystitis

Hi Jane, I understand that the RT can go on delivering for some considerable time after treatment, so it could be related.  A delicate subject but is the burning internal or at the tip?  My simple view would be the further away from the prostate the less likely it is RT damage but more likely a cut or sore.  Either way, I would probably ask to see a urologist for a definitive view.

Thanks David, it's been going on now for 3 weeks and doesn't have any cuts but I'm hoping with the increased water intake will see some improvement and we will push to get seen back at Urology after the PSA test next week

 DJN I feel for your partner as I’m in a similar position after only 4 RT sessions.

I too have had my urine tested and I'm waiting for the results.

After reading elsewhere on the forum, I bought Cystopurin (potassium citrate) which is intended to reduce acid in the urine, which reduces that burning sensation. I received a consultant's OK before using it. Radiographers know all about it. It seems to help, but relief is not instant.

Hydration seems to be key to managing this condition. I'm finding it distressing and damn painful. I hope it eases for your partner and for anyone struggling with it.

All the best,

Chris

Hi DJN (Jane),

I finished my RT at the back end of 2023 & because of a prevalence to kidney stones try to drink at least 2 ltr of water a day in addition to any other fluids.  Whilst this does mean a few extra bathroom visits, the regular flushing of the pipes has kept me free of any burning sensations, & I think the water is the key to this.

Hope your partner gets it sorted soon.

Best Wishes

Brian