Anyone else on this particular combination?
3 months into decapeptyl (1/4ly injections) and 2 months of darolutamide tabs for Stage 4 disatant metastatic recurrent. Treatment duration "forever" (aka not very long!).
Side effects mainly a general drop in energy, stamina, strength - rule of thumb seems to be -20-25% which pretty much matches my cycling speed and distance ability! Tire more easily. Very occasional mild flushes.
Intermittent muscle ache exactly equal in both upper arms, only when cycling. Partly cured by changing to a more upright riding position to lessen weight on arms. The exactness of this, plus way can come and go during one 15-20 mile ride, both arms at precisely same time surprises me!
This seems pretty low key to me. Is it simply because relatively early days? What else should I expect?
[Partly off topic. Next psa/testosterone reading end-Feb, consultant's team 9 March.
Not really sure what I should be asking. A pet scan to check lymph nodes progression, as I consider psa levels largely irrelevant? Any chance of RT to any particularly "large" node sites? Benefits of adding chemo worth the side effect disbenefits?
No doubt won't get a straight answer to "how long until what....?", although a number of calculators available to professionals but not to patients.]
Any comments, thoughts, welcome.
Good luck, Dave
