Waiting List - when to chase up

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My husband is on hormone treatment and will have radiotherapy when the cancer has shrunk.  He’s on a waiting list to see the oncologist for a first appointment with them at Sheffield.  At what point should we chase up the appointment and ask where he is on the list?

Thank you 

  • Hello   Most people seem to be on hormone therapy for six months before radiotherapy starts, although a planning scan usually happens before then. Mine was in month 5. So if he’s recently started HT and there are no worsening symptoms it may be a little while before you get another appointment in the diary. The 6/7 weeks you mentioned seems very reasonable.

  • Hello  

    Thank you for updating your partners profile - it's a great help. T3aN0M0 - clear bone scan and Gleason 7 = those magic words "Curative Pathway". So he's started his Bicalutamide and had his first Prostrap injection. All is good and the PSA should be dropping like a stone. I can't see any urgency to see the oncologist unless you have any questions. 

    Radiotherapy takes place once the Prostap has done it's work and "put the cancer to sleep" the radiotherapy then kills the cancer off. it's normal practice to wait 4-6 months before Radiotherapy starts to give the Hormone Therapy time to work.

    As Hormone Therapy does tend to weaken your bone structure I would ask your GP for a prescription for Calcium/Vitamin D Tablets.

    Best wishes - Brian.

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  • My very basic timeline may help you. PSA readings and major "happenings".  The drop in PSA from the HT, before I started the RT, was amazing - proves it works !  Once the HT has started there is no hurry.

    9 Feb 2024                14.9

    3 Apr 2024                16.6

    14 Jun 2024              HT started

    09 Oct 2024              RT Planning

    11 Oct 2024              0.9

    24 Oct – 23 Nov       SGRT X 20.    60Gy

    20 Jan 2025              0.06    

    17 Mar 2025             0.05

    4 Sep 2025               0.02

    12 Dec 2025             0.01

  • This is roughly how I'd expect the planning scan and the start of RT 'proper' to be spaced. Given the difficulty of keeping bladder, prostate and rectum in the same relative position, the shorter the period the better I'd have thought.

    Your tumbling PSA figures must make you happy. They would me.

    Best regards,

    Chris M

  • Thank you everyone who has replied.  Your replies are all helpful.