Hormone treatment helpful tips for symptoms

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Hi all,  I had a radical prostatectomy in September after a few years of investigation. All has gone well with that and incontinence is no more. Also natural erections are returning, and even better with sildenafil and vacuum pump exercises.

I have a score on 7 and my PSA was over 40 before surgery. 8 weeks after surgery my PSA was 0.27 and I have read it could possibly have continued to drop. Even so I went for a PET scan which is clear. My consultant now wants another PSA test to see what's happening but either way if it goes up or down more he advised I should have RT and HR as a single cancer cell was found in 1 of 14 removed lymph nodes and with my cancer being more towards middle aggressive rather than none aggressive.

So my question is - does anyone have any tips or advice for approaching and dealing with HR side effects. I like to be pro active and try to find anyway possible to ease what may come. I am generally fit and well and I have started exercising again after surgery. Also I do meditation and mindfulness which I hope will help with the mind side of things. I'm very interested to hear how people have coped.

Thanks in advance, Eddy.

  • Mine have been so minimal as to be virtually non-existent, just the odd hot feeling for a minute or two evey now and again. On the advice of my GP I decided at outset not to sit back and passively wait for side effects and ‘come out fighting’ I started walking at least four miles a day and doing 15 minutes a day strength training. I also went on a weight loss campaign as I was unacceptably overweight - I followed an amazing app called NUTRACHECK and I’ve lost 12% of my body weight in three months - on my first ever diet! - and I’ve found it really easy thanks to the app. Finally, I’ve been doing pelvic strength exercises using the Squeezy app. I’m confident that taking it head-on has been to my great advantage. Good luck with it all!

  • Hello Eddy  . I’m with  on HT side-effects, my body seems to be coping well too. My weight has crept up 3kg in the last year though and has taken me out of the green BMI range, so keeping an eye on that. A handheld fan is useful if you do get the more pronounced hot flushes. Exercising helps keep fatigue at bay…

  • Hello Eddy ( 

    Hormone Therapy affects us all in different ways - some people have no side effects, others get the lot. Keeping as fit as possible helps as fatigue and ED are going to be your main enemy. i have had over 3 years on HT - had every side effect going and some not listed, but never had a day off work and managed all of them.

    Hormone therapy can push you towards type 2 diabetes and and can thin your bone structure so I would advise asking your GP for a prescription for calcium and vitamin D tablets.

    Good luck with it - let us know how you get on.

    Best wishes - Brian.

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  • Hi Kevin, wow you have done so much and it sounds like you are doing fantastic, well done mate. I myself have used Nutracheck and before my operation my doctor advised the fast 800 diet which worked amazingly and I kept track of that in Nutracheck. I lost almost 2 stone in two months on that, and although it's not advisable to stay on it any longer than 12 weeks it's changed my diet so now I do eat a lot healthier. I'm glad you mentioned the walking and weights as I had read about those and shall definitely move forward with those tips. As for pelvic exercises I started them 8 weeks before surgery and it's now become part of my daily routine so I'm glad you've advised those too. I guess the main thing I'm seeing and reading are about fitness, weight management and calcium + vitamin D. I guess there's some apprehensiveness in me but like with the surgery I'll face it and attack it head on like you said you have. Huge thanks for your help in this and keep up the amazing progress mate ️

  • Hi Amp, it's really good to hear you're coping well on the hormone therapy. I most definitely need to knock a stone off before I begin I think as although I lost a lot of weight for my surgery some has crept back on. The fan is a great tip and I shall get a couple ordered to have about the house. Thanks for the advise and best of luck with your journey.

  • Thanks for your great reply - and well done to you too. Taking it head on is the way to go!

  • Hi Eddy, it sounds like you’re approaching recovery really thoughtfully. Staying active, as you are, and including mindfulness and meditation can make a big difference both physically and mentally. For gentle strength, mobility, and core support, some people find Pilates helpful during recovery — having the right equipment can make it easier to maintain a routine at home: store.betterme.world/.../pilates-studio-kit-chocolate. Wishing you the best as you continue healing and managing treatment side effects!

  • Hi Lauren, thank you for sharing and thanks for the well wishes. I shall most certainly keep up everything as you say and it's great to have such support from you and others.

  • Eddy, I should have also said HT side-effects with me didn’t start until I was 6 months in. I then had 6 months of fairly infrequent but often short duration, quite noticeable, hot flushes, some days more than others. That’s when the fan came in very useful. I’m now 12 months in and haven’t noticed one for at least a week. But we’re all different. My next 3-monthly injection is just over a week away.

  • Hi, ahhh ok I'll keep a mental note of that and see what happens with me. I'm now doing as much work as I can in this last week or two before they start my treatment. Have a good weekend mate.