Tough 20 hours

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Been waiting for a date for robot prostatectomy following referral 28.07.2025. Stage 2 PC but with cribriform architecture hence the need for surgery.

Was called at 4pm yesterday and put on standby for a cancellation today.

After a hectic and highly anxious night, got a call just after 9am to say missing patient had turned up and I wasn't in today.

On the positive side, I have finally been given a date on 12 December. I appreciate it is still a month away, but assuming it will go ahead then, I prefer having a date than the anxiety of the last 20 hours not knowing if I would be going ahead or not today.

I see in the press has been highlighting the abject failure to meet cancer treatment targets throughout the NHS. It is sad that the service is usually so good but certainly in my area it can't get anywhere near the 62-day target for treatment following referral. 

  • Sorry to hear about your anxious night - not the circumstances anyone would wish for!

    yes, I saw the news item about delays in cancer care. It is so very depressing. Resident doctors are going out on strike again, too. Will it ever get better?!

  • I've been suffering with anxiety over fear of the cancer spreading during the delay in treatment and last night's anxiety was another level.

    I spent most of the night with one earbud in listening to podcasts and drifiting in and out of sleep.

    Funny though, at about 4am I felt like today won't be the day and I managed a bit more sleep.

    It wasn't a total surprise when my cancellation slot was cancelled.

    Can't fault the service once you get it. I had my diagnosis in 30 days from referall. Just bad luck that my treating hospital has a large backlog for robotic prostatectomy. 

  • Hello  

    Do give our Support line a call on 0808 808 00 00 (8am to 8pm 7 days a week) they can give you lots of tips and advice about anxiety.

    Best wishes - Brian.

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  • OMG - poor you.  I can’t imagine the anxiety & worry level caused by the false hope of a cancellation.  On the plus side, you’re a T2 and still confined to the prostate.  Of course, you’re presumably not on HT, so you’re anxious to get it removed before any spread. The thing is that it is slow growing and December isn’t far away in the scheme of things.  You end on a positive note about 30 days from referral to diagnosis so you realise that you’re already ahead of the curve.  AW