Finally. 164 days after referral. Did we get a fully staged and graded diagnosis? No. Despite a PET PSMA scan and a CT scan, they still don't know whether the lung nodule is cancerous or not. However, mets to pelvic lymph nodes and the pelvic bone show it is Stage 4 and DH is aware that it is incurable.
So, he stops the Orgovyx and goes onto 6 monthly injections, coupled with Abiraterone, calcium, alendronic acid and Prednisolone and then they look at radiotherapy in the new year.
He is not a candidate for chemo because he already has quite severe neuropathy.
The consultant told him there was no reason why he should not live a long and productive life. However, somewhere in the barrage of information the consultant also said that the hormone treatment is only good for 12-18 months, so I really don't know.
Hello ansteynomad
Thank you for the update and I note what you say.
I agree with Brian (Buzzers) and Mr U - yes the body can become "Hormone Resistant" but it's not a given. I am on my 4th year of the same Hormone drug and it's working well for me. If one treatment stops working there are other tools in the box.
Abiraterone has many good reports and Radiotherapy is now very targeted and not the "hit and miss" of the old days.
Remember our Support Line is there for both you and DH on 0808 808 00 00 (8am to 8pm 7 days a week) should you need any extra help and support and there's always someone around for a chat (or vent) if needed.
Best wishes - Brian.
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