Hello out there,
It has now been over 2 months since my robotic assisted radical prostatectomy.
My follow up date with my consultant is on March 18th with a blood test the week before.
I have gone through a lot of emotions since then including pain and depression.
Once l got to the end of January my wife said "thank god that month is over"
Unfortunately my mother suffered a heart attack and sadly passed away on the 3rd of February :-(
I saw my mum everyday, she had 4 carers look after her and was the grand age of 94.
I couldn`t see mum for over 3 weeks and had to tell her l had, had a hernia operation
as l didn`t want her to worry if l mentioned the word cancer.
Hello out there,
I went to the Doctors to follow up on the advise l had over the phone.
This turn of events has weirdly helped me to focus on something other than myself.
I have thrown myself in to sorting out mums bills, house and funeral arrangements.
And believe you me there is a mountain of paperwork to get through.
I feel like i`m still looking after mum which is comforting.
I have had appointments back at the hospital but they soon realised it was too soon after my operation to be of any use.
They have re-scheduled in another 2 months time.
I did speak to a Urology Nurse about my incontinence which is getting me down.
The best pads are Tena level 3 but i`m getting through a pack of 9 a day which is costing £180 - £200 a month !!
The Urology Nurse was very helpful and is going to send me some pads to help out and hopefully half the load.
I still suffer with some soreness so am still using Cavilon and Savalon to ease any pain.
I am doing as much as l can exercise wise and making good albeit slow progress.
I do gardening for the elderly so it is my aim to start gardening again once the better weather is here to give me a goal to aim for.
UPDATE:
I went to see my consultant on March 18th.
He said my operation went well but was sorry to hear about my journey since.
He said he was hoping my PSA level would be 0 to 0.04 but it was 0.09 and he was concerned.
He sent me for another PSA test and that came back as 0.10
He said he was hoping to see me in 6 months but said it would now be 3 months, l left quite worried.
So l went for my PSA test (31/5/25) probably my most important to date.
I received a letter yesterday stating my PSA level was 0.10 ug/L
The Urology department said they were happy that it had stabilised so do another test in 3 months.
This was a massive relief although l don`t fully understand why the reading is that figure or what it represents ?
I am 10 stone 7 lbs and will be 67 in September, l have always remained fit and active, the past 6 years i`ve been gardening for the elderly.
However l don`t know if anyone can help or advise as the past month l have felt really lethargic and not much energy.at all.
My incontinence is getting better but still gets me down.
I was thinking of seeing my doctor to go to the Well Man Clinic for some help.
l really don`t feel myself and my energy levels are poor, all very frustrating.
Any advice welcome :-)
Hello out there,
I went to the Doctors to follow up on the advise l had over the phone.
They carried out various blood tests which all proved to be ok.
I needed to do this for my own peace of mind as l felt the Hospital are just focusing on the Cancer.
I have my next blood test/PSA reading coming up next week so fingers crossed again !!
I also have a face to face with the Urology Nurse in October, she has been monitoring my incontinence levels and feels l should be further on and using less pads.
The incontinence does get me down :-(
She mentioned l could have an operation to help but didn`t go in to detail.
Could anyone advise me what this would involve and what the success rate would be please?
Hello Rod (Rod the Mod)
Thanks for the update although I am sorry to read all is not well. I think the operation that your nurse was talking about may be fitting an Artificial Urinary Sphincter - link here:
N H S - Artificial Urinary Sphincter.
We have a few Community members who have one - I hope they will see this post and respond.
As you say
The incontinence does get me down :-(
Do you have a local "Maggie's" - This is a cancer support centre you can visit for free support - link here "Maggie's".
There's also our support line on 0808 808 00 00 (8am to 8pm 7 days a week) - They can offer you help and support.
Or how about a "Buddy" someone to talk to once a week - it can be cancer or the price of fish and chips - again here's a link for you - Macmillan Buddies.
Finally how about joining Andy's Man Club - link here - Andysmanclub.
These can all provide mental health support for you.
I hope the above helps, if I can do anything for you please do let me know (my private message box is open too).
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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