MDT today

You will be told in time, but you could ask for it to be hurried up if you have the contact numbers or emails of the oncology team. I agree it’s not fair we as patients aren’t included but I guess we would slow it down with questions about every little thing.

The thing to remember is that when they do tell you what’s decided you can then question everything and if necessary to ask for a second opinion. 

Hi Ansteynomad, it always seems wrong to me that they have a MDT meeting without the most important people being there - ie the patient and his chosen support! We have even been notified of an ‘appointment ‘ but told not to attend because this is the MDT meeting!

I can see that having patients and their significant others at the MDT meeting simply would not work. Thats fine. What is concerning me at the moment, and causing me a great deal of stress, is the fact that nobody can tell us when or how we will find out what happened at that meeting.

We have a friend who started her breast cancer journey at about the same time as my husband was referred. She has a full diagnosis, she has already had surgery and she is now lining up for radiotherapy. We will be 12 weeks in on Monday and we still do not have a definitive diagnosis,  never mind a treatment plan!

I think a MDT meeting is a clinical discussion primarily . But , how can they make a decision about people without their input. The NHS did have the mantra, ‘No decision about me, without me.’ Not sure whether it still prevails, though.

The good news is we have a Urology appointment next Thursday. Hopefully we will make some progress then.