AM I BEING PARANOID

johnam 6 hours ago

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170 subscribers
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OH and I met with Oncologist today and PSA remains undetectable ( since January) and his liver function is back to normal . He didn’t want to put him back up to 1000mg Abiraterone so remains on 500 .

He suggested if his bloods remain the same in September ( seen 12weekly at present). He will then see him every 6 months . And at that point consider putting him back into 1000mg or leave him in 500mg . Asked what the difference would make . So he went into trial stats etc. He also explained his ECG was normal , however if any further breathless episodes he will arrange a 48 hour ECG .

I just feel 6 monthly blood tests at this stage is too long or am I just being paranoid. As we know no cure just palliative treatment . HELP !!!!!

Liz & OH

Mace 4 hours ago

Hi I get a bit breathless and have afib ,can I ask is it the hormone injections that can make you breathless?

johnam 3 hours ago in reply to Mace

Hi Mace My husband went to the GP and she checked him out and decided that he needed an ECG as she thought she heard AF . However, the ECG was absolutely normal.

We know that the Abiraterone can cause issues with heart & liver . His liver function was high so they reduced the Abiraterone and it’s back to normal . So maybe same with the breathlessness .

He walks miles every morning and it was only occasionally he got breathless on steep inclines . But he never stopped and it went away . He also goes to the gym three times at least a week . He still gets tired but feels the exercise helps. He’s determined not to let the cancer take over his life and this is his way of coping.

take care Mace & hope your doing ok

best wishes

Liz & OH xx

Mace 3 hours ago in reply to johnam

Thank you ,yes it's mainly when I go uphill and I must say it's worse if I've had a pint

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AM I BEING PARANOID