Rising PSA, only 5 months since prescribed Abireratone

Oh Polly, I feel for both of you. The new scans will show what you are dealing with, and what treatment will be  appropriate. This disease is so horrible and I can only imagine the dread you must be going through.

Sending you love and strength to get through these next worrying weeks.

X

What Wayfarer says, Polly.

Plenty of stuff on here (and elsewhere) about what it means if you want to read it in advance of scans and further consultations.

Best regards and good luck, Dave 

Feeling angry about the PSA rises I’ve learned that it’s not worth it but is commonplace.

I ended up with a 32 PSA on Aberiterone before I was given a new pill, placating. It was my first time at dealing with failure, drug failure in me, and it wasn’t too long (a year and a bit) before that was cancelled for my first real chemotherapy.

These steps, up the staircase of cancer progression, are very hard to cope with and you do it alone. It’s not fair.

I have angry moments when I don’t understand why there’s nothing being done for me when I’m in so much pain both mentally and physically, but most of the problem is a lack of communication. In fact I struggle all the time with the conduit to the oncologist blocked by holidays and sickness but frustratingly I didn’t know till much later on.

Your anger is natural so get a stress ball or punch bag to relieve your problems. Writing here also can also relieve your stress with all of us having the same problems and thoughts about our unknown cancer pathway.

Good luck

Sorry to read of this latest worry for you both, Polly. I don’t know enough about abiraterone to pass any really useful comment, I’m afraid. I guess this is one for the oncologist to review the scans and then give you his/her better informed advice. I’m afraid, though, that this means a few weeks of anxiety for you both. Please remember that there are many of us rooting for you both and are here to listen and support you as much as we can and whenever you need.

sending you a big hug and the best of luck in this journey that none of us would have chosen for ourselvesxxx

Thanks guys.....I think am just really frustrated, I know it might not be a treatment failure, could be other things and we just need to wait.....I think its more frustrating when I see him so well, no new symptoms, probably feeling the best he has so how can it possibly be failing???‍

My feelings were the same at the same point as you and I couldn’t believe there was anything wrong with me. I was wondering if the tests were wrong.

Why I had no symptoms was a blessing not a frustration when I look back now. I’ve got too many symptoms now and know it was wrong to be wasting time and energy when I was in your position. So try and see this current situation as a time to get away and do the things you won’t be able to do later. I’m not being rotten it’s just what I’ve found to be the truth.

Good luck