Nervous hello for Prostate Cancer Forum

Hello Rooky 

Welcome to the group - we love people who "lurk" and then join us - don't worry about it.

So he's got a "lowish" PSA of 12, so yes that would indicate cancer and PIRADS 5 means they have a good view of it on the MRI - it's likely to be cancer but not spread - so happy days - very much treatable.

The biopsy was for me the hardest part of my journey - so here's our information sheet for you.

The Prostate Biopsy.

Once he has the biopsy results the hospital will hold an MDT meeting to work out his treatment plan.

Don't worry, he will be fine.

Feel free to ask any questions - nothing is to trivial .

Best wishes - Brian.

Thank you Brian very much appreciated and for the info sheet.  I think it’s me who is more concerned about the biopsy he just wants it done.  I will certainly let you know how it goes but I think it will be a two week wait for any answers again thanks for a bit of reassurance it really does help knowing it’s coming from people ‘in the know’ .  I think once we know the Gleason Score  we then can envisage what’s ahead .  

Hello Rooky 

You are at the hardest part of the journey - the diagnosis - it's test - wait for results -  test - wait for rsults.

Once you have the full diagnosis and a treatment plan you will be able to get on with life. He should be fine but I suspect he's a typical man - outside there's nothing wrong - but inside, yes he wants to know.

Moving forward, once he gets his results - here's how to read them;

Prostate Cancer - Staging and grading.

A bit of light reading for bed time .

You know where we are  - feel free  to join in and ask any questions.

Best wishes - Brian.

Mine were almost identical.  You may have already read my bio.   AW

Again Brian thanks so much it’s a lot to take in it’s like ‘homework’ but I’m grateful to have some inside knowledge on board to help when it comes to ‘Question time’

The waiting part is by far the worst . My PSA  was quite a bit higher than yours, mine come back 21 with 2 growths,  strangely even before the MRI and biopsy results I already knew it would show the big C but still you start asking questions in your head  why me it can't be i don't feel unwell, I've always kept fit, never smoked didn't drink much , not eating much fatty greasy food. Once you get the results and treatment plans you start to come to terms with it

 The bone scan and waiting for results is the worst bit. I have just 8 days back completed my 20 sessions of radiotherapy treatment , side effects have been on the whole not to bad, now along 3 years of 3 monthly injections.  

Don't be scared to talk to people,  there is plenty of help and support out there

Thank you AW I think I have probably read yours and several other  bio’s enough I could possibly recite them.  I think the most confusing  thing at present and after biopsy is what treatment will be offered and which to accept.  Many of you should be given gold medals for the ‘hurdles’ involved in this journey.  

Hi Terence

again thank you for taking the time to share your story with me I will take all you’ve said on board. I have a feeling I will be back after the biopsy result for more reassurance from this forum.  It’s a brilliant place to offload and I think it helps not only the person doing the questioning but the people being able to respond with answers too.  Thanks again 

Hello Rooky 

Welcome to the community that no one want to belong to.

From what you say two years ago I was in a very similar position to your OH and am now out the other end of the cancer journey. It all seems very daunting at your present stage just waiting for tests and results but be assured that when you have treatment plan a great weight will lift from you both. Not all hospital trusts are as slow as mine but don't be afraid to prompt yours and ask questions if you feel it necessary. Politeness and firmness can work wonders.

If you have the time and patience please feel free to read my bio. Please keep us informed on progress.

Keep as cheerful and positive as you can, I'm sure that things will all be good in the end.

Rod

Thank you.  I’m beginning to realise that this journey will involve lots of waiting times at certain stages it’s something I will have to get used to being a tad impatient at anything involving waiting times.  Patience and politeness will be my two new words of the day.  I shall read your bio tonight and thanks again for your understanding