I was diagnosed in Sept 2022. PSA 8.2, Gleeson 3-4 (7). T3b , spread to seminal vessels but nodes OK.
At that point my world was turned upside down, I didn't expect that outcome, I just had urinary problems, I didn't know anything about PC and I didn't know anyone who had it. I didn't know about this forum or where to get any advice and guidance. I put my trust in my consultant who told me I would be on HT for 3 years and would have 20 RT sessions.
The RT was nearly 2 years ago and my last HT injection was April 2025....so that will continue to work until mid July.
I had all the side effects expected but underestimated how it would effect me mentally. I didn't feel like the man I used to be for many reasons that was the hardest to take....ED, lack of Libido, muscle loss, mood swings etc.
My PSA has stayed consistently low over the last 12 months at < 0.02. So I know the treatment has done its job and hopefully that will continue after the HT.
The purpose of my post is to support my fellow warriers and even though there will be dark days ( I had many) there is light at the end of the tunnel....hang on in there and fight this beast....it will be worth if in the end.
Hello Brizzy1
Great post and well done for sticking the course - 3 years on Hormone Therapy sounds easy but as you and I know it's not at all and there are times when you just want to knock it on the head.
I wish you many more low PSA tests and once again thank you for the update.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello Brizzy
congratulations on finishing your treatment! It is a long haul!
My husband was Gleason 4+3 T3a N0 M0- diagnosed Autumn 2022. He had HT and RT. He didn’t cope at all well with the HT and as his PSA had been consistently very low and has he was struggling with other health problems, the oncologist stopped the HT after 18 months - almost 12 months ago.
So, where are we now?
As we were told to expect, the PSA has risen slightly but remains below 1.0. We were told anything below 2.0 is ok and sometimes even a bit higher.
Energy levels, mood levels are much higher.
Libido has returned but ‘performance’ not as he wishes and ‘midriff bulge’ remains!
All in all, we both know it might have been much worse and hope that there won’t be any further problems
I hope all goes well for you but, if you are like my husband, you will need a bit of patience in getting back to normal!
I also finished my radiotherapy on 2/5/25, I dread the injections. Mylast one really hurt when she administered it.
The weight gain is a major issue. I'vealready gained over a stone, I can't even do to much exercising, I also am suffering with stenosis spinel channel nerve damage, and awaiting to see if the consultant recommends surgery, at moment ,its been put on hold due to my cancer which is more important to get sorted. I just take each day I wake up a gift
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007