I was diagnosed in 2022 with T3b, gleeson 3+4, psa 8. No spread to the lymph nodes.
At the time I wasn't aware of all the help, support and guidance you can get...so went along with the consultant and 3 year plan for HT and 20 RT.
It's now almost 2 years since the RT and had my last HT jab last week.
Throughout my journey I have suffered with most of the common side effects, fatigue, loss of strength/muscle, libido, ED, hot sweats and mood swings. I excersize a lot so managed to keep the weight down, although I have developed a nice pair of Moobs.
It has been an awful journey and missing the man I used to be....its been tough on my wife, trying to keep my spirits up.
However, over the last few weeks I have realised how lucky I am to still be here and in my mind I believe I am over the worse.....yes there may be reacurrance but at the moment everything is held at bay.
The moral of my story is don't waste your life worrying about your treatment whilst going through it...that is what I did. Instead say to yourself the alternative is much worse. I feel like I wasted the best part of 3 years worrying and been negative when I have such much to look forward to whilst many don't...I'm one of the lucky ones.
Hello Brizzy1
Cracking post, you are so right. Like you I had 3 years of hell, whatever side effects HT can give you I got them (and more) but apart from 2 really bad weeks with the support from my wife, this Community and a Positive Attitude I got there last December.
I don't worry about my treatment or prognosis (I should change my strapline to "que sara sara" - but as a "Champ" perhaps not!! as I offer support to others) and yes I have a rising PSA but life is good.
..I'm one of the lucky ones.
Yes as T3's we are lucky - indeed I would go as far as to say I am a "strange T3" with my high PSA but we have so many T4's on the Community with a "treatable but not curable" diagnosis who have an amazing positive attitude and I look to them all with respect - especially those that support others.
I personally believe a "Positive Attitude" is half the battle and the correct support and help is another 25%.
Together as a group we are strong - as I said cracking post Thank you.
Best wishes - Brian.
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Hi BBrizzy1
Excellent positive post . I’m really happy for you. Please keep us up to date on how you are feeling as the testosterone comes back. That will be so weird ? After all that time. I’m also really interested in your treatment up to date, initial PSA, type of Hormone therapy if you don’t mind sharing these details. I just looked on your profile and there’s nothing there. 
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You are slightly similar to Mr BW by the stats you have shared except BW is HT for life. I think around this area is a finely balanced line of cure or treatable and of course that line is always being pushed in a positive direction with new drugs and treatments used. Hence your post is very positive to read and also connects with how MrBW is toying with coming off HT for a break if possible. ( to see what’s going on)
I find the ‘worrying’ can be hard to sustain after a few years, we’ve hit a seam of acceptance and hope?, to some degree. Now and again I have a meltdown but overall we just get on with life now. I really like the abandoning of “saving for the future”, we have a whole new, Sod it, let’s have it, mentality. It’s brilliant!, in fact if Mr BW lives long enough to suddenly get a cure we will be in the ****! When older because we will of spent it all and had too many good times.
All the best with coming off HT and don’t forget to live your life as if time is limited. Don’t sweat the small stuff xx
Ahhh darn it , BW not as close as I hoped then. From now on you are not allowed to worry so much and must have a great time ! 
