I received my final diagnosis from my consultant today. A quick recap….. last November my PSA was 77.7, and after being red flagged I was quickly seen by my urology consultant. After a DRE, MRI, CT scan, bone scan, and colonoscopy, I waited (and prayed hard) In March I was told no sign of cancer in any scans, including the colonoscopy, but he was very concerned about the PSA being 77.7. So a repeat blood test was carried out, and if it was still high a sedated biopsy would take place. Today my consultant contacted me and said the PSA has come down to 6.19. So no action needed just now. A repeat PSA in three months, and a bladder diary/urine flow test soon. Even my consultant said he was amazed that the PSA had reduced so dramatically in four months. Hopefully this can encourage someone who has an elevated PSA at the beginning, that you just don’t know until the final diagnosis. I must thank all of you guys and girls for all the help, encouragement, support, and kind words since last November. You have really helped me in this emotional roller coaster. Posting this is bitter sweet to be totally honest, as I understand everyone reading this are going through incredible personal battles, and I feel sort of like a cheat in a way. I’m not sure if my experience can be of any help to anyone in the future, only to say miracles can happen, so stay strong and keep believing.
Tony.
Hey Tony (Anthony5)
That's great news, never mind feeling a cheat - the good news is you don't need full membership of our exclusive club.
I would love to know what caused the elevated PSA readings, but we will never know I suspect.
Thank you ever so much for taking the time to let us know how you got on. let's hope (in the nicest way) we don't see too much of you in the future.
Best wishes moving forward - Brian.
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Brian, thank you again for the many times you calmed me down! I have a theory about the PSA level. Perhaps it was human error to begin with. Maybe whoever typed the original blood test report accidentally tapped the number 7 twice, and it should have read 7.7 instead of 77.7. I suppose it will remain a mystery. Thank you again Brian.
Tony
Hello Anthony5
That certainly happens - some years back I had possible gall bladder problems. My GP organised some blood tests............the next thing - I get a call from the GP telling me to urgently go to the Surgical Assessment Unit at my local District Hospital. I then had two lots of blood tests, a scan, 3 Drs poking and prodding me. It eventually transpired that one reading which should have been <12 was over 200 according to the first blood test !! The next two tests were around 20 which fitted my symptoms. Verdict..........probable typo !
What I don’t understand is why they didn’t do a confirmatory PSA blood test after the 77.7. I know there was some urgency to do scans etc, but the cost of a re test is negligible. Anyway, I’m really pleased that the reading is still low(ish) and the scans would have been needed as the reading is above the norm. AW
My thoughts exactly!! I thought when the hospital took over my care from the GP they would have done their own blood tests. But as you said, it was elevated anyway. Thank you Alpine Wanderer.
Tony
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