Giving up treatment?

Hi S and welcome, sorry to hear about your situation.

I must admit I would think similar to yourself as I'm  always going out, exercising etc.

The thought of not being able to do that anymore and also feeling tired all the time would really get to me.

So possibly it may be time to reduce your meds or change them

I have read good things about olarparib, in particular good for advanced cancers, I didn't know u had to take it forever, I thought it was a way to get rid of the cancer but obviously could be wrong there.

So if it was me, just my thoughts, I would consider at least reducing meds to enable you to do more, all those treatments (tablets, jabs) u take must have their own side effects.

I have enough problems with blood pressure pills so can understand what u are going thru, obviously worse.

Hope things get better for you and also see what others say

All the best

Steve 

Good Morning Slartibartfast 

I can see your point of view having had 3 years HT and every side effect going and some not even listed!! Twice I wondered should I knock this on the head, but those two words "Curative Pathway" kept me going.

"Quality of Life" - now that's another thing, where do you draw the line? To me it's an individual choice and you need to make an informed choice, not just say sod the treatment - life is precious and you only get one.

For what it's worth (and it's my personal opinion!)., go back to your team, and suggest you have a break from treatment. Your PSA is being held at 0.03. Say how about tests every 3 months and if your PSA rises to +2 you go back on treatment? Mention it's to help your mental health.

I understand for me the NHS has invested quite a lot of it's time and money to keep me going so I now do my best to try and keep going. - i know it's hard but to me life is great even if I can't do everything I used to be able to do.

Best wishes - Brian.

Thanks for the reply
I have a telephone meeting with the consultant on Tuesday and I'm going to suggest stopping Olaparib.
They stopped it for a month and I felt a lot better but then started me back on a slightly reduced dose (250mg instead of 300)
As you say they can monitor the PSA and if it starts going higher we can look again.
When I stopped Olaparib for a month it wasn't perfect but the fatigue was a lot better than it is when on Olaparib.
I'll see what they say.

Hi, I can really sympathise with your question, I've been on Abiraterone with prednisolone and prostap for 18 months now and my previous sporty self has disappeared. I used to cycle about 150 miles a week at a decent speed as well as do other sports, I now do about 30 miles a week  at a very slow speed and it's a struggle, going to the supermarket exhausts me. As you say - I wake up tired and it goes downhill from there. This is existing rather than living. I'm only due for 3 years of this so I grind my teeth and keep going, had I been due for longer I would have asked for intermittent HT as Millibob suggested. As long as PSA is monitored I hope you can get a few months of your old self before going into another section of HT.

Good luck 

G