Failed RAPR , Salvage RT a risk, on six monthly Decapeptyl injections . Any suggestions for discussion with Oncologist ?

 It has been a while since I posted . I can't help but feel let down by a treatment plan put in place without a diagnostic scan and am waiting for a meeting to discuss my 'journey' .

I have updated my profile with the details but, in  summary , I am  Gleeson 9 (4 + 5 )with extra prostatic extension basal margin positive . PT3bN1. My PET scan on  22/10 showed PC in a few small lymph nodes in the presacral and left iliac region . No detectable extra pelvic disease

I commenced Decapeptyl ( 6 monthly injections ) on 08/11/24. I am getting the anticipated hot flushes regularly during the day but also night sweats up to 5 times a night which are leaving me very tired . Black Cohosh  and Sage tablets have had little or no effect .

In my meeting with the Oncologist on 21/11 I was  advised that the PRT positive lymph nodes are immediately adjacent the small bowel and that this increases the risk of side effects with salvage RT. The recommendation was not to proceed with RT. The possibility of additional Systemic HT was discussed but is not proceeding at the moment due to the  potential for more  side effects .

I had further blood tests 2 weeks ago which returned a PSA of 0.06 and Testosterone of 0.6 . My post op PSA was 1.6.This  seems good news.

I requested a further meeting with my Oncolgist. This is on 20/2. I want to discuss the results and also ask about any other treatment options . Can the PC not adjacent the bowel be treated with RT ? Is Proton beam therapy(out with the NHS and expensive ) a possibility ?

I would appreciate any suggestions for questions to ask or of potential treatments.  

Thanks in anticipation .