Apalutamide

Hi Sharloup.

Good morning it's great to meet you on here today.

Yes I had my diagnosis of PC which had spread to my pelvis and bones in June 2023.

I was put on to Apalutamide and Prostate injections straight away which brought my PSA down from 1000+ to single figures.

Unfortunately my PSA has started to climb over the past few months so I have had RT on my pelvis to treat my increased pain which worked instantly which was great.

But again my PSA started to climb again as well as my pain. My consultant then decided to stop my Apalutamide and start me on chemo which he has always told me that I would not be strong enough!!!!

I had my first chemo recently and I was fine and I will be having my second session tomorrow so fingers crossed I will be fine.

Hopefully this will kick the cancer down the road for some time. I do hope that you're dad is ok once he starts his treatment and please come back to us if you require any further help and support???

Prostate Worrier.

Sharon (Sharloup ), a very good question.  If the suggestion to move to Apalutamide is purely to reduce fatigue, I am with you in your view ‘why change’.  If this is the case, it’s all about quality of life and your dad is the only one who can make that decision.  If the reason to change is supported by evidence that changing has no or limited impact on survival rates then it would seem a simple decision.  Hope that helps.  David

I was diagnosed June 24 T4 with bone met 

Put on zoladex 10.8 3 monthly implant and apalutamide 4 tablets a day ,while on holiday in November developed a severe rash and had to stop taking apalutamide. Saw oncologist in January and have been put back on apalutamide at 3 tablets per day ,no drama as yet 

Thank you so much for your reply.

sounds like you’ve been in an extremely emotional journey and I really hope the chemo helps with no side effects. Sending strength and support x

Thank you for your reply.

glad they’ve helped you apart from the rash. 

can I ask if your PSA has gone down?

thank you

sharon 

Thank you for your reply David. 
Appreciate your reassurance

Sharon 

Yeah down from 31 to 0.1 

Good Morning Sharloup,  My OH has been on Apalutamide since July 24. He is doing really well and side effects have been mild joint pain and fatigue.  He does regular excercise walking and a good diet.  He does get hot flushes but he got these before he started the tablets with the Zoladex.  He takes 4 tablets a day about Lunchtime. I do check his BP two or three times a week and it’s been good. They have brought his psa down to below 1. We are pleased with them. Long may it last.  Best wishes.

Majestic

Hi Sharloup.

Many thanks for your reply yes I am getting ready for my 2nd chemo this afternoon at 2.00 so hopefully things stay stable afterwards!!!!

Watch out cancer I am coming for you!!!!!

Prostate Worrier.

Good luck with your chemo this afternoon PW.