Hi, today my husband had a three monthly review, over the telephone, with his oncologist. All good news except that my husband’s PSA level has raised for the third time…each three monthly review it is a little bit higher. It has gone from 1.5 to 3.5 in six months. Consultant says he isn’t overly concerned about it but if it rises again by next review he will need to scan my husband. My husband can’t walk due to metastasis in spinal cord. He is learning to stand through physiotherapy. The consultant says that my husband must start going out in his wheelchair so that he can attend hospital appointments rather than have phone calls. To date my husband has been out only once. The palaver of hiring a wheelchair taxi overwhelms him and he didn’t like /feel safe travelling in the chair in the taxi. Has anyone ever heard of a mobile CT scanner that can come to our home?
My husband is a panicker and scared stiff of hospital. He is trying hard to cope with the news of raised PSA but is frightened by the thought of going to the hospital for scans.
His mental health isn’t good and consultant says this may be a side effect of the monthly Degarilix infection. My husband can’t walk, this makes him very depressed.moods change quickly . He needs to use a commode, has a catheter and has lymphoedema in his legs. Physio was supposed to be an in hospital care program but due to ward closure he is having it at home a couple of times a week. He is described as remarkable because he can stand for about 1/2 minutes. Doctors said he would never stand or walk ! He is pinning his hopes on being able to walk again.
I am disappointed in myself that I can’t make him feel better and I am not coping well with being the only person he wants with him 24/7. Family are all too busy or far away to help.I am struggling with the impact on his emotional state and his reliance upon me for every aspect of his life and health.
Any information and advice/support will be greatly welcomed and appreciated very much.
Thank you for reading all this. x
