Hi everyone hope everyone has had a good Christmas and new year its not been a good start to our year if I’m honest been a bit of a worry not been sleeping and worrying for my partner today is the day we start all the tests for prostate cancer
Im just wandering if anyone knows how long will we have to wait for the results as its so stressful not knowing is it quite quick as isn’t it suppose to be a two week pathway to get results from scans and a treatment plan so I’ve read online we got referred just before Christmas cheers x
MRI was 4 days not had the bone scan or biopsy yet has was your PSA ?
Hello Clare Clarebryan62
The diagnostic process is the most worrying part of this journey and all Health Authorities have different wait times.
The cancer pathway is 14 days from GP appointment to seeing a Hospital Specialist and a total of 62 days before treatment starts. If you are outside this target you can ask your hospital PALS (Patient Advisory and Liaison Service) for help.
Personal advice is to record every name, telephone number and e-mail address of anyone involved in Bryan's treatment. If you live in England download the NHS App and ask you GP for FULL access to Bryan's records - this helps you see what's going on. If he get's an appointment and there's a long wait - contact the hospital and tell them of Bryan's anxiety and you can attend any short notice cancellation (there are plenty).
For your information here's a link : The Staging, Grading and Risk Groups - Prostate Cancer.
Remember our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) is there for both of you to help with anxiety etc.
If I can do anything for you just let me know - no question is too trivial.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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I think waiting times are a lottery tbh I started journey end of February 24 met with urologist March 18 he told 62 days from then until treatment which eventually started first week of july , biopsy results alone took 8 weeks .
When I chased up urologist he asked me if I would kindly be a bit more patient
Hope you are more lucky than me
It's the worst part ,diagnosis
Hi Clarebryan62 and Mace , the waiting is by far the worst part and Brian ( Millibob ) has given you some help if you need to give a nudge. Please remember that PCa is slow growing unlike other cancers and waiting a few weeks won’t actually make any difference. I know this won’t stop you worrying but thought I should mention it. Good luck to you both and please ask any questions you have. David
You are going through the absolute worst part.
Every delay and wait seems to be forever, and you are never quite sure, even when you do get results, you may not be totally sure what they mean or imply.
It is a time of real anxiety and confusion, and I went through it between April and June 2024.
I was told these things during the journey that helped a bit:
I rather hung on to these things when my mind was full of "what ifs".
I wish you well.
Steve
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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