That’s a better Christmas than last year.

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Hello peeps,I haven’t posted for some time as life has been some what busy with fighting on with PC ,Well after a total roller coaster of a year and all the physical and mental anguish I could have only dreamt of the news I was given 2 weeks ago,My journey to date is in my updated bio.

I would like to wish everyone the best Christmas possible and a better new year. I wanted to give a special shout out to millibob,always hope,worried wife and everyone else that have given me the courage to press on I thank you all. What I have learned from this space is to never give up hope.

If anyone wants any information on RARP. ED ,continence side affects my experience, Hormone therapy and salvage radiotherapy what to expect and possible side effects I’m more than happy to share my experience.

All the best to you all. .

Whittaker 17 hours ago

Hi you will see from his updated bio that hubby had a prostatectomy 3 years ago but as his PSA has started to rise it appears they missed some. Last review PSA 0.27 oncologist recommends starting HT and salvage RT for 6.5 weeks which would be at Rosemere Centre in Preston. Hubby is concerned about side effects bladder and bowel wise and I would be grateful for any info. Thanks

Jacqui

Alwayshope 10 hours ago

Good morning Jonny five and really pleased you had an early Christmas present with your undetectable PSA. Stay vigilant, ALWAYS HOPE, enjoy the rest of the festive season and stay strong for 2025.

Millibob 7 hours ago

Good Morning Jonny (Jonny five)

Wow, that's been a bit of a blow - but things are back on track which is great news. 2025 is another year and time to keep that nice low PSA going.

Thank you for all the help and support you have given across the Community this year - let's all have a good year next year moving forward.

Best wishes - Brian.

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David2017 7 hours ago

Hi Jonny five , that’s quite a rollercoaster over some years but just goes to show not to give up. I hope your PSA stays low. Happy New Year. David

David2017 6 hours ago in reply to Whittaker

Hi JacquiWhittaker , I haven’t had my prostate removed but had RT 37 sessions. I found it tiring and so repetitive (like Groundhog Day) but other than fatigue building it was an easy treatment. Others have had some side effects during treatment but these are mostly managed by the radiotherapy team who have seen it all! Long term effects for me were radiation proctitis (scarring) which caused bleeding for some while but that wasn’t really any inconvenience (just a shock when it first happened) and now after 7 years is just a very occasional occurrence. Most of us found the hard part the planning meeting where you need to find out what state OH bowels and bladder need to be in (empty or full) and then replicate this for each session. I found that I got into a weekday routine and could manage easily by diet and water intake. Please come back with any questions (maybe start a new thread). Best wishes, David

Whittaker 6 hours ago in reply to David2017

Thank you for your response sounds promising. He is still undecided but it has to be his decision. Positive outcomes like yours are encouraging.

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