No words (ct scan, psa level & bone scan)

Hello Dudebear 

What can I say - I am so sorry to read your news. it's not what anyone wants but, your team is on his case. We can be here for you both with practical and emotional support.

Take a break - enjoy Christmas and the New Year with family and friends and lets face the treatment head on together in January. We have plenty of Community members who will be around to offer help, support and advice.

I am not sure if you are aware, but two of our Community members have been writing a "blog" about their Chemotherapy and here are the links if you wish to read them:

 Prostate Cancer Recurrence - Triple Therapy 

 Grant’s prostrate cancer Chemo blog 

For additional support we also have this group you may wish to join:

Chemotherapy forum 

I know you are both devastated now - we do have additional help for you and if you give the Support Line a call on 0808 808 00 00 (8am to 8pm 7 days a week) the fantastic folk on there will be able to provide you with some additional support.

If I can do anything for you please let me know either by message here or my message box is open for you.

Best wishes - Brian.

Thank you 

I’ve just got no words at the minute xx

Hello Dudebear 

I know, it's a devastating blow - but you will both find the strength to fight this and together we will get the better of it. We are all here for you - anything we can do just ask - keep the faith - I did!!

Best wishes - Brian.

Hi, Don't panic. My PSA reached 4,000 (yes 4K) in 2022 with metastes throughout and the oncologist thought that treatment was not likely to be worthwhile. We disagreed. I had successful chemo and onto ADT. PSA fell to 20. It is climbing again and I'm about to start radium 223 so two very good years and I'm not done yet.

It is a long journey, but be positive. Just tell your daughters; if you are beating about the bush they will worry even more - include them in the journey. Have a really good Christmas 2024 and look forward to Christmas 2025.

Best wishes

P.S.

" If only our gp listened to him 3 years ago, we may not be in this position." How many more of us in the same boat? Twelve years ago I went to GP several times with a list of symptoms which clealry indicated prostate cancer. I was told that the GP had not had her lunch and she would only deal with one sign - a huge bone growth on my shoulder - and sent me for an x-ray on my elbow! After several further visits with similar results I just gave up until I became seriously ill. Today we are bombarded with messages for men to get checked, but GPs are just not on the same hymn sheet- few will take requests for testing. What can we do? Grr

Thank you, 

it’s just so raw at the moment, thought my husband would get a breather from all this, it’s been over 12 months since starting this journey & not a very nice one

we’ve told one daughter & will go & visit the other 2 once my husband is dressed, 

There are things I just don’t understand, his lymph node in neck has gone now & his psa is still dropping, & ct scan was done 2 weeks ago, when his lymph node was raised. Would a ct scan now show something different !!! 
he’s been told her won’t beable to go back on hormone treatment, tablets, just his 3 monthly injection 

thanks for listening to me 

Gill 

Dudebear / Skoda,

Too many GPs appear to be completely useless much of the time I'm afraid.

After HT / RT in 2016 my PSA went above the referral threshold having increased slowly for 2 years. At that point my GP put it on my record with comments "NORMAL, NO ACTION REQUIRED" Good job I looked on the GP app, I queried it, she apologised and referred me back to hospital. I've now completed chemo and am on Prostap / Darolutamide indefinitely. The consequences of missing treatment for another year would likely have been disastrous for me.

It's essential we all keep an eye on things and get full access to our records so we can manage our conditions where possible with the information on there.

Good Morning excavator 

A most important post - the same thing happened to me.

I would urge anyone in England (The app doesn't work anywhere else) to download the NHS App and request FULL ACCESS to their NHS Records.

There you can keep a track of your test results etc. The App gives you your results and a scale showing if you are too high or low in that test and you can check your previous results.

Thanks for posting.

Best wishes - Brian.

Hi if you any bother getting a psa test with your doctor just send of to a company I used on amazon RANDOX HEALTHcost 35 pounds came back in 48 hrs with recommendation to see doctor who's test was almost identical at 31