PSA rise after SRT things were going so well....

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Hello friends

I wanted to update you and ask for some thoughts on my latest result.

Just to recap I had Radical prostatectomy Nov 2023.

9 weeks after this my PSA was 0.1. It went to 0.22 in 11 weeks and I pushed for SRT. In May/June 2024 I had 20 fractions of SRT. At the start of the treatment my PSA was measured at 0.25.

My SRT finished 18th June 2024 and I had my PSA checked 8 weeks after this. The great news was my PSA had dropped from 0.25 to 0.09. I was advised this was very positive and that I would check every 3 months and hope for it to come down over time to around 0.03.

Last week i had my 3 month PSA test (5 months from end of SRT) and my result was 0.11

I spoke to the urology nurse yesterday and she said that it takes at least 6 months for PSA to reach Nadir after SRT. She has advised I wait for 3.months and see how it is in Feb and that unless it starts a climbing trend, then there will be no action.

I don't know why, after the journey I've had over the last 18 months but I feel crushed. I'm sick of Google and trying to find answers for every scenario. Depending on what you read ranges from nothing to worry about to this is not good.

I'm not wanting sympathy as I know there are so many there in a more challenging position.

I've also felt a full bladder feeling over the last weeks as if I had a UTI but sample came back clear.

Any thoughts or comments would be welcomed as mind is in overdrive

Take care all

Onestepforward over 1 year ago in reply to David2017

Hi David,

Thanks for your message. Part of my problem is to over analyse everything and then only see the negatives. I'm so lucky to have had the treatment plan I've had and at 52 have a long road ahead to enjoy life with family and kids

Take care

Onestepforward over 1 year ago in reply to Alpine Wanderer

Thanks Alpine Warrior,

I appreciate your positive comments. I do believe the real knowledge comes from people on these forums who are living through similar journeys.

When talking PSA with my oncologist he referred me onto the nurses who were the experts in readings and patterns

Take care

Onestepforward over 1 year ago in reply to Millibob

Hi Brian,

Ref the bladder I spoke to onco nurse and she had asked had I been on a bike or had sex or have a urine infection as this could cause a blip or false positive on PSA result after RP and SRP.

I sent a urine sample off on Friday and just got a mail saying I have a urine infection and to start antibiotics....

Hopefully this will help with both.

Cheerz

Millibob over 1 year ago in reply to Onestepforward

Hello Onestepforward

Well at least you have an answer. Thanks for keeping us in the loop.

I hope the antibiotics sort you out.

Best wishes - Brian.

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Ulfhbg over 1 year ago

Hi !

I thought of some things that you might check up:

- Try to see if you can have a meeting with a oncologist; a second opinion, more specialized feedback from an expert on your concerns because they are the experts and it’s always better to be safe then sorry

- If your up to it, ask them to shorter the time between the PSA tests, for example 6 weeks in order to earlier verify any trend. I mean if your up to it, why not because it’s only a simple blood test and the waiting time is shorter

Discuss with them about the possibility of PSMA Pet Scan. Your PSA is low I know and anyhow, if they are up to it and there is nothing that might help you with your stress

Even if I also believe that it’s probably nothing like the wonderful people that have answered you do, if you’ve asked your medical team and they say no then you have tried the best you can to get more answers.

Best wishes - Ulf

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