Hello friends
I wanted to update you and ask for some thoughts on my latest result.
Just to recap I had Radical prostatectomy Nov 2023.
9 weeks after this my PSA was 0.1. It went to 0.22 in 11 weeks and I pushed for SRT. In May/June 2024 I had 20 fractions of SRT. At the start of the treatment my PSA was measured at 0.25.
My SRT finished 18th June 2024 and I had my PSA checked 8 weeks after this. The great news was my PSA had dropped from 0.25 to 0.09. I was advised this was very positive and that I would check every 3 months and hope for it to come down over time to around 0.03.
Last week i had my 3 month PSA test (5 months from end of SRT) and my result was 0.11
I spoke to the urology nurse yesterday and she said that it takes at least 6 months for PSA to reach Nadir after SRT. She has advised I wait for 3.months and see how it is in Feb and that unless it starts a climbing trend, then there will be no action.
I don't know why, after the journey I've had over the last 18 months but I feel crushed. I'm sick of Google and trying to find answers for every scenario. Depending on what you read ranges from nothing to worry about to this is not good.
I'm not wanting sympathy as I know there are so many there in a more challenging position.
I've also felt a full bladder feeling over the last weeks as if I had a UTI but sample came back clear.
Any thoughts or comments would be welcomed as mind is in overdrive
Take care all
Hello Onestepforward
Things don't look too bad to me. The SRT has brought the PSA down and your latest result only shows a rise of 0.02. Don't forget after radiotherapy there can be a PSA "bounce" and it can take up to 18 months for the full RT effects to clear from your body. Don't worry and let's see what February 2025 brings.
For trusted information use Macmillan and Prostate Cancer UK - do keep away from Dr Google!!
Not too sure about the "full bladder" feeling, that's one for your oncology team I think if the feeling continues.
I do hope this helps - I think you are in a good place,
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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Thanks Brian,
As always you are the voice of reason and never fail to respond and reach out to people's posts. I salute you sir!
Hi Ulf,
Many thanks for the reply. No I have never had any hormone therapy. My oncologist believed that this would only be recommended if the PSA was much higher
Although I have seen many other threads where it was done along with the radiotherapy.
The nurse said my first drop was really healthy from 0.25 to 0.09. However, the nurse I spoke to this week didn't really offer any reassurance only to wait to Feb which is hard mentally.
Thank you!!
Hello Onestepforward
which is hard mentally.
Just to let you know we do offer free BUPA counselling and here's the link:-
www.macmillan.org.uk/.../bupa-counselling-and-emotional-well-being-support
We also have our "Buddy" service, again, here's the link:-
Don't forget our support line on 0808 808 00 00 is open 7 days a week from 8am to 8pm.
Trust me - these services are not only free, they can help take the anguish away. I do hope the above helps.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi Onestepforward . I agree with Brian, a 0.2 rise in PSA is small and it can bounce around.
The full bladder feeling could be a side effect of the radiotherapy so keep an eye on your flow. The urethra travels through the prostate and the Prostatectomy along with the radiotherapy will have changed the structure of that part of your anatomy which can affect how elastic things are. Also a stricture can occur in the urethra which restricts the emptying of the bladder. Keep up with the pelvic floor exercises plus there are tablets which might help.
Just a minor correction to your informative post Alwayshope : the rise is only 0.02. I agree that this minor increase is not unexpected (due to bounce), ESPECIALLY as Onestepforward is not on hormone therapy. Really, a figure of 0.11 is very respectable after SRT to the prostate gland bed & surrounding area, post RARP. AW
Thanks for the correction. Decimal point in the wrong place.
Hi Onestepforward in my view 0.11 is a fantastic result so soon after RT. Others have mentioned the bounce but the tolerance of 0.02 is too low to consider to be a rise. Best wishes, David
Hi Alwayshope,
Yes i agree ref bladder. Tbh I would go to toilet quite often, even before this all started. I've started to cut down and make the dreaded move to decaff coffee to see if that helps as ground fresh coffee is my weakness lol
I've also restarted pelvic floor exercises over the last few weeks and that may be affecting the feeling down below and the nerves?
Take care and thanks
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