7 weeks after the initial histology update to Gleeson 9 I finally obtained the details - not good . G9 extra prostatic extension , base margin positive PT3bN1
I asked for the PSMA PET scan after the initial update but was told I had to wait until the 8 week post op PSA TEST I said it was obvious it would not be undetectable but to no avail .
I finally got a scan date of 16/10 but the scanner broke down and it’s now tomorrow (22/10) . Despite trying to stay positive, realistically , I am struggling to see how the scan will work out well with the current diagnosis .
Why I wasn’t given the PSMA PET scan after a non diagnostic MRI I will never know but intend to find out
keeping everything crossed
best advice I can give - don’t get fobbed off , don’t take no for an answer and do your research.
best of luck to all who find themselves on this forum
Good morning Magpie29 .
All the best for the scan today and fingers crossed that it doesn't light up like a Christmas tree. Let us know how you get on.
Hi. Magpie, sorry to read of your ongoing problems. I hope the scan goes ahead today and all goes well!
Whatever cancer throws your way, we’re right there with you.
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