An update and can anyone give advice

Hi !

without knowing the actual treatment your husband have had or is going through; I guess he’s on hormone therapy (and perhaps also Abiraterone). Anyway, a PSA drop is always a good thing of course. Often you see rapid declines in the beginning when for example on hormone therapy and then it may slow down. But a decrease is always good even if it’s slower then in the beginning.

He needs to add upper body workout and preferbly rubber band workout because walking will not help out in keeping upper body muscles. Your husband seems to have no problem doing excersise so adding at least 3 days of upper body strength can help him not loosing muscles and actually helping him keeping his muscles.

Hope this helps you a little bit and I’m sure you will have more good responses from some of all the wonderful people here in this community 

Best wishes - Ulf

Hi Liz (johnam ), I wasn’t quite sure if your OH’s PSA is down to 1 or halved to 7, but either way the HT is doing its job in reducing the PSA and it’s still early days.  From memory I took about 8 months to get below 1.  While it is reducing or staying static he doesn’t need to worry.  If the PCa has spread to his lymphs, I can’t imagine why they won’t be treated and hopefully his oncologist will reassure him next week.

As Ulfhbg has said, it is important to keep fit and upper body work will help keep his bones in better shape as the HT can thin the bones.  It is great that he is still walking 10 miles a day.  Is he still losing weight?  Best wishes, David

Hi David , OH PSE was 14 when diagnosed in March . Check my profile .its now only going down by . 1 ish as we thought it would be below 1 by now . But when I read your post it will take a bit longer as he wasn’t started on HT right away . 
His weight  has stabilised now and he is 83kg. 

we only met the oncologist for the 1st time in July and was prescribed Aberaterone with prednisone daily and a Prostap injection every 12 weeks . He just got his 2nd prostap in September and felt a bit off for a good few days.

will update you once we see the Oncologist next week . 
many thanks for taking the time to message 

regards

Liz & OH X

Hello Liz.

I know we all want to have an undetectable PSA after a short time but your husband has still had a good reduction in only 3months and there is no reason why it cannot still edge down further but be prepared for it bouncing around a little. It has been MRI/CT scans for us today and can empathise with the scanxiety so all the best for you tomorrow. Get all your questions ready for next week with the oncologist and let us know how you get on.

Best wishes to you and OH .xx

Hello Liz (johnam) 

That's a great PSA reduction, I am sure it will keep going down.

We all want the 0.00 reading but will never achieve it whist we are still the not so proud owner of our prostate. The "normal" PSA reading for a man "our age" is 4.5 so 1 shows the treatment is working fine. I set off on my journey 33 months ago with a PSA of 182 and mine has never been below my last test of 0.29 - so I know the HT is working.

Your team are on the case so as Alwayshope said in her post, get your questions sorted for the oncologist next week. I know waiting for scans and meetings can be a worrying time but stick with it and think positive - you are both doing great.

Best wishes - Brian.

Hi Linda, hope you are both doing ok and the MRI/CT brings good results. I hope I can questions this time as have plenty to ask. I will let you know how it goes  . Best wishes tk you both 

Liz & OH 

xxx

Hi Brian,

many thanks for your support it’s very much appreciated . 

regards

Luz & OH

Hi,

As others have said, while walking is good, it is not sufficient to retain muscle while on HT, I would suggest adding resistance training such as lifting weights or resistance bands. I am on Abiraterone too, and have had to change my training which used to be mainly cardio (running/cycling) towards resistance training. I now go to the gym twice a week and lift to failure, and have one personal trainer session a week at the gym. I initially lost muscle when going on Abiraterone, but am now back almost to my original muscle mass by this very rigorous lifting ragime.

Hope this helps.

Good luck with the MRI and oncology appointment.

G

Thank you for the advice . I will pass this onto my OH 

regards

Liz