LH level <0.1, Serum test for testosterone 0.7

David2017 said:

nearest I get to an answer is that not all departments are connected

Actually, this is true.  However, if my local surgery get any hospital blood tests, letters from consultants, etc, they load them on to my App (usually the same day as they receive them).  Maybe you should write to them and ask them to do the same.    AW

Hi Brian, 

I've been reading the comments about the MDT meetings with interest and would suggest that a 'halfway house' approach could be beneficial to all. By that I mean a signed off as accurate by all attendees set of minutes should always be available to the patient within a couple of days of the meeting.

I realise that the patient would be unlikely to understand the medical terms used but would nevertheless be able to query any part of it either within his/her treating hospital or independently and also have time to digest the possible options. 

Hi Osca, totally agree but when I asked  for a copy of the minutes was bluntly told we don’t do minute . I explained if they hold any meeting minutes need to be produced . I’m working on this with my MP as he also agreed it’s not good enough 

 johnam  good man.

My opinion of our NHS from what little experience I and my family have had is that in general the medical/clinical staff are good. BUT the admin from top to bottom are generally totally useless! That includes the CEO in my case.

Example, as I left the radiology department after my last RT session I told one of the review staff that I was going to be away in Europe for some weeks and would like my post RT consultant meeting appointment date emailed to me. He totally agreed and made a point of double checking my email address. Whilst in France having heard nothing from them I rang the appointment department to be told that nothing had been arranged but offered me a date to which I agreed. When I asked for the confirmation to be emailed to me I was told that they didn't have the facility to do that!

What the hell do they do for their salary, even the basic eBayer can communicate better than that!

PS you may have seen a Channel 4 documentary on the A&E depart of said hospital. 

I think these are symptoms of a system growing into a new phase.

Using the NHS app I can get into my record at the GP, which shows that letters have been received from a consultant (any consultant) but does not show the letters.

Yet, if I email and ask, the GP's office send them to me. I can them all, save them into Microsoft's OneDrive, and then review before appointments. I download them all onto my tablet, and take them with me to the next appointment.

For some reason, some of the specialist nurses seem to be a little wary of this.

I suspect that the overall aim is to get all this stuff working together. For example, from my local hospital I can't see my Urology or Oncology appointments, but could see all the appointments etc from the Ear Nose and Throat Department.

They are in the same building.

It's a bit odd.

Hello mstev2 

mstev2 said:

but does not show the letters.

Once I get into my " Your GP Health record" all my Consultants letters etc are stored under the heading "Documents". it looks like my GP practice scans them and adds them.

Best wishes - Brian.

Hello AW - you might find this won't continue soon. The GPs across the country are working to 'collective action' rules . They are incrementally increasing the amount of non contracted work they are not going to do.

WE can't see my husband's PSA results on his App or surgery records (OMP) unless they are requested by the practice and not the hospital.

We're getting into GDPR regulations here and their (GP and Hospital) obligation to make computerised personal information available, within a time period and I believe at no cost.

 AndyK  I must apologise to you for raising the ‘access to records’ which has rather set a hare running and buried your original post.  Please come back if you feel you want to resurrect your original post.  Best wishes, David

Hi David 2017,

I've now got an update - I've got an endocrinology appointment tomorrow, arranged by my GP, basically because, after 8 months post treatment, I still suffer from horrific 'hot flashes' (up to 16 in any 24 hour period), have zero energy, erectile dysfunction (in my case erectile NONfunction having tried a pump, then the little blue tabs), testosterone level risen by 0.1 (in 3 months) to 0.8, Serum LH with NO Change in 3 months, uncontrollable weight gain. And the final indignity, my partner of 36 years declines any form of intimacy (she can get it, and prefers to go, elsewhere... ). Admittedly, my PSA score is still <0.1, but at what 'quality of life?'