Hi All,
AH BarryW and Eddiel all suggested that I will share Jacob journey with the RT so other people can benefit.
Quick general background: Jacob diagnosed 6 months ago with advanced PC to nodes and pelvic bones. All the details on the profile. He is on HT with Zoladex injection and Enzalutamide.
Side effects are tolerable. Fatigue and bad hot flushes. All was going well, he is active, avid swimmer and we both get lots of help from this community.
On Thursday he started the RT which is EBRT, once a week for 6 weeks, only to the primer tumor.
We have been told to follow the instructions carefully, enema 2 hours before and drink 4 glassed of water exactly 40 mins before the treatment. On the dot of 40 mins before, Jacob drink the 4 glasses in succession within 5 mins.
40 mins gone by, an hour gone by and then very politely I asked what is happening. We were told he is next. He was admitted over an hour after the 40 mins gone. 1 hour and 40 mins after drinking the water. When on the sunbed he was told his bladder is too full. Of course it is, because the time lapsed. He was told to pee into 2 cups to empty the bladder by half. So he did and had the treatment. He was told he can carry on swimming no problem there and also he can eat whatever he likes just not alcohol which he does not drink anyway. As he allowed to swim, he swam on Friday.
No problem on Thursday or Friday. This morning I woke up at 5am my usual and Jacob saying he cannot pee. So I cannot deal with anything when I wake up, need 15 mins to focus.
The next two hours were much better and with lots of water the peeing processing started to ease. Not normal but there is a slow flow.
The oncologist nurse call us back to reassure and said that only if he cannot pee or strong pain we should go to A&E.
Sorry Eddie for this long post, promise the update will be much shorter.
Lots of love to everyone
Dafna
