All Systems Go

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Well, that was quick. I chased the medical oncologist (Greek God) up this morning and he has had a pow wow with the radio oncologist, so I was told to speak to him as they both thought hubby was eligible for SBRT on the distant mets. Did this at lunchtime and was asked when we would like it done. Whenever we replied. Got a text at 17:30 to ask if we are available TOMORROW  at 15:50 for the planning scan and can we take the PSMA PET scan disc. So all set for treatment starting next week. Having to sort out an apartment near the hospital for a couple of weeks as he predicts it will be 5 sessions on alternate week days.

  • I thought it was about time I put up my profile if anyone on the T4 journey is interested. I have been reluctant to do so before because it is so atypical but thought that it might help if people are going through the different treatments to see what is available. Please ask any questions.

  • Morning AH, many times I thought of asking why you didn't do a profile, Mine needs re-doing, it's  bit of a mess though can understand you being reluctant, I worry about scaring people, especially newbies as though my cancer may look typical to them, those subtle variations, they may not understand and hopefully never get make a big difference, and I'm still not sure whether my other health issues are relevant or not. I will look forward to reading, and hopefully understanding, your profile later.

    Eddie xx

  • I was reluctant Eddie because I didn't want to frighten people newly diagnosed so I have put qualifying statements in but if you think anything needs adjusting then let me know. The other reason I decided to post was to let people know that, even though they may have a rare type then there are still treatments available which can hold the cancer at bay for some considerable time.

  • Hello  

    Cracking profile - thanks for sharing - it's great to show others that all is not lost and I agree with the comments that your attitude to the cancer is half the battle - I agree 100% with the statement.

    I am sure other Community members have helped along the way - and I thought we were counting in glasses not bottles!! One thing I would say is that I always pay my debts - so it will get there even if I have to bring it myself!!

    Kind regards - Brian ThumbsupSunglassesThumbsup.

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  • You're alright Brian, it's still in the glasses but it will be cheaper to buy the bottle by the time you make it out here.

  • I confess to having a taste for a nice peaty single malt - but here in Turkey we always have a bottle of Raki in the fridge!! (although after almost 4 weeks we are back home tomorrow! Disappointed).

    I will get you a bottle - fear not!! I NEVER let anyone down!

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  • Not so keen on the peaty ones but plenty of others available.

    That time went quickly. I expect you will be counting down the days 'til the next one.

  • Note made!

    France for 3.5 weeks mid July - 12 of us and 6 dogs - we must be mad!!

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    Strength, Courage, Faith, Hope, Defiance, VICTORY.

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  • Great post.  I think it shows that even with a bad diagnosis there are treatments available (and more in the toolbox).  It also shows life can be ‘normal’ with PCa.  I remember at the start thinking I wouldn’t last long, but at that time hadn’t come across this site to really give me much hope.  My oncologist uses the same phrase about more options in the toolbox, which I find very encouraging, maybe some of the targeted therapies being tested on other cancers might move some of us non curables back onto a curable pathway before too long.  
    Very best wishes to you both, David

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.