Well, that was quick. I chased the medical oncologist (Greek God) up this morning and he has had a pow wow with the radio oncologist, so I was told to speak to him as they both thought hubby was eligible for SBRT on the distant mets. Did this at lunchtime and was asked when we would like it done. Whenever we replied. Got a text at 17:30 to ask if we are available TOMORROW at 15:50 for the planning scan and can we take the PSMA PET scan disc. So all set for treatment starting next week. Having to sort out an apartment near the hospital for a couple of weeks as he predicts it will be 5 sessions on alternate week days.
Hi Dafna.
It is still a different protocol that Jacob is being put through in that it is a high individual dose, so arguably of interest. At least you still have plenty of options for the future but I am sure Jacob will be fine for a long time.
The leak happened before we went away - I woke up to the sound of gushing water from our 'Friends and Family', apartment attached to our house. Fortunately it is one step down from our place so I was able to broom the water out of the door. It was then a matter of letting things dry out but the kitchen sink unit had blown. We are both pretty handy as we physically converted a cow byre into a home as a retirement project in the UK to keep us busy.
Latest update. Nausea is under control by eating little and often and gradually weaning him off the antiemetics. Explosive belching and occasional hiccups after eating so trying to get him to chew his food and eat more slowly - it would help if he put his teeth in but he kept them out as a precaution when he was puking up after treatment and 'forgets' to put them in now. Appetite is beginning to come back, as is drinking herbal teas. Still sleeping for England/Greece but it is early days yet. Abdomen is still a little tender. The smiley face round the belly button has now faded and no longer greets the osteopath. The main issue is the depression and insecurity which is a long term battle due to the PTSD from his forces days but is more intrusive at the moment and can be sparked by the silliest of things - the latest is he is in floods of tears because he hasn't been able to get me a card for our wedding anniversary next week as such things do not exist in Greece, nor do bunches of flowers. We have agreed that going out for a special lunch will be good and something to look forward to.
How did Jacob's session go jacobanddafna , Dafna? What was the outcome about swimming?
Hi Ah,
So sorry to hear about the moods and depression. You have to do something to shake him out of it. A lunch outside would help and maybe to model the new lace ware? On a serious note keep him secure and loved and I know if anyone can do it, you can!
Jacob - it all was well until this morning. Just came off the phone with the oncology ward. He has problem to urinate and some pain when doing so. We know it is part of the parcel and side effect. I just want to ask everyone: When do you know that you need intervention like catheter or antibiotic? He can pee but little and the pain is only when he is peeing?
The oncology nurse said to keep an eye on it. We simply do not want to rush to anything.
Any advise is welcome
Lots of love
Dafna
Hi Dafna.
Sorry to hear that Jacob is having problems. We were told to increase fluid intake to help flush things out which can reduce pain but it depends on the type of pain he is having. Is the pain at the tip of the penis, further up in the tummy or in the sides/back, and does it burn when he pees? The radiotherapy can cause 'bruising' of the prostate which can reduce the diameter of the urethra. See if you can get Jacob to pee into a bottle so that you can gauge his output compared to input but I personally would seek help sooner rather than later, just to be safe.
You are both part of the family so keep us updated please.
That paints such a picture. It’s really horrible when you feel sick all the time poor thing. It reminds me of that pregnancy sickness, I used to make tiny little sandwiches and nibble things all through the day rather than a meal, would that help? ( less to be sick with anyway) poor hubby. You are lovely AW you look after him so well
Lx
Are the explosive belches you or him?
Seriously though! I hope he recovers soon. A handmade card says much more. As for flowers, a plant lasts much longer. A Rosebush would be lovely.
Happy Wedding anniversary for next week, hope you are taking care of yourself.
Steve (SteveCam)
Hi Dafna, I was wondering how Jacob was doing also. There was someone talking about the same thing the other day. It’s worth a new post to catch everyone as it’s seems common with RT. Hope he gets through it ok x
L
Thank you AH
It is at the tip of the penis but he said it is getting better now
Will keep an eye on it
xxx
Dafna
Thank you L.
I will put a new post if situation worsen. At the moment he said it is getting better.
Lots of love
Dafna
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007