Well, that was quick. I chased the medical oncologist (Greek God) up this morning and he has had a pow wow with the radio oncologist, so I was told to speak to him as they both thought hubby was eligible for SBRT on the distant mets. Did this at lunchtime and was asked when we would like it done. Whenever we replied. Got a text at 17:30 to ask if we are available TOMORROW at 15:50 for the planning scan and can we take the PSMA PET scan disc. So all set for treatment starting next week. Having to sort out an apartment near the hospital for a couple of weeks as he predicts it will be 5 sessions on alternate week days.
Thank you for your reassuring post Steve Stevecam . It was a bit frightening when hubby was in distress because he couldn't breathe and he has been put on 21 days of Innohep injections but have been warned about the bruising. He then has 6 months of tablets Rivaroxaban. Were you given anything to protect the stomach (guts) as he has been told to take them as well. We have an appointment with the GG next week but are grateful to the GP for being so proactive in organising the blood tests so quickly. Our microbiology lab also make it very clear on the report what the implications are for outlying readings and they also email me with the results the same day. He is very tired at the moment and I would think it will take a little while to get back to his normal.
Such wonderful treatment from the Greek NHS.
So glad to hear that he is on the right treatment so quickly.
Sending love and hugs
Xx
There wasn't anything to protect my stomach, just advice to try and inject somewhere that hadn't been injected. With the constant bruising my stomach was really hard and painful!
They tried me on Rivaroxaban but I had a reaction to it. Apixiban has worked out the best for me, one at 6am, the other at 6pm.
The specialist I had was brilliant, it was thanks to him that my PC was picked up when it was.
The pulmonary Embolism totally ground me to a halt. It was worse than fatigue.
If I'd been a dog I'd have been put down.
But... I came through it!
The constant bruising is still evident, cutting myself shaving takes ages to stop bleeding.
The worst thing now is that if I have a fall and hit my head, I have to go to hospital to get scanned incase of a brain bleed.
It will take your OH a while to get back to his normal, please give him my best, I know what he is going through!!!
Finally, don't forget to take care of yourself too!!!
Steve (SteveCam)
No pain with the injections so far but he is used to having them in the stomach. Maybe after a couple of weeks it will be different. He will see his cardiologist next week as well as the GG and GP so that we can monitor things. It is so useful hearing of others experience as it makes me feel more in control of what I need to look out for. He definitely knows what you mean about being put down if you were a dog.
He has always been a right bleeder as he was on aspirin (stopped now). He has a tendency to fall so I have checked the ferrules are all good to go and the garden is littered with strategically placed chairs. His breathing is a little better today so he can supervise the olive pruning sitting in the sun - should be a fun day as we have a good team organised.
Take care yourself.
Hi AH, sorry to hear about hubby's PE, as I'm not allowed any blood thinners due to heart issues and bowl bleeds, I was fitted with a Vena Cava filter 15 months ago, and I've had no problems with my lungs since, and no meds either.
Eddie
One last thing about being on the blood thinners, my fingers always seem to be cold, no matter the weather.
I've spoken to others and they say the same.
Steve (SteveCam)
Thanks Eddie. Something for me to look up. and ask about
Hi Steve. Hubby always feels cold and has done so since being on HT. At the moment he has 4 layers on and I am in a T shirt.
Hi L, I had mine via a neck incision using nerve blocks, "my 1st time, "which reduces time in surgery and lessons the amount of post Op pain relief needed so improving recovery times. I've had nerve blocks 8 times now, and if P, would be ok being awake during surgery, I would recommend them to everyone, PS, you can have the incision via the groin I believe.
Eddie
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