All Systems Go

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Well, that was quick. I chased the medical oncologist (Greek God) up this morning and he has had a pow wow with the radio oncologist, so I was told to speak to him as they both thought hubby was eligible for SBRT on the distant mets. Did this at lunchtime and was asked when we would like it done. Whenever we replied. Got a text at 17:30 to ask if we are available TOMORROW  at 15:50 for the planning scan and can we take the PSMA PET scan disc. So all set for treatment starting next week. Having to sort out an apartment near the hospital for a couple of weeks as he predicts it will be 5 sessions on alternate week days.

  • Eddie, the amazing thing now is that I know more people affected by Cancer than not.

    I feel privileged to be in this position.

    Steve (SteveCam)

  • Sounds good Brian, I will keep an eye out (if you know what I mean).

    Steve (SteveCam)

  • Hi Steve there's a real bond, almost instant, when you meet someone who also has cancer, more so when they have the same prognosis as you, just last Thursday met a girl at a meeting, an important meeting, and we just chatted away like old friends talking about things you wouldn't think of talking about to most people and not in front of others, The meeting overran, no one there minded, the others said it was an eye opener and thanked us, and i have another friend.

    Eddie

  • Hi Steve

    Thanks for that - yes we are off to Turkey on 9 May back 3 June the wedding anniversary is 19 May so es we will be having a special Kebab and a Raki !!

    I think having cancer gives you a connection or "bond" with others in the same boat and you understand them much more than someone who has never had a diagnosis.

    Take care Steve - Brian 

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  • That's brilliant!!!

    Steve (SteveCam)

  • Eddie, I know what you mean.

    I remember about 4 years ago, I had never spoken to anyone with Cancer, wouldn't have known what to say.

    But now, male, female, any type of Cancer I feel like I have an affinity with them.  That might sound silly.

    Steve (SteveCam)

  • Brian, so true (funny how it seems).

    I think having cancer gives you a connection or "bond" with others in the same boat and you understand them much more than someone who has never had a diagnosis.

    Steve (SteveCam)

  • Hi Alwayshope, was wondering how the weekend off has been for you both and whether your both feeling refreshed and recharged and ready for the last 2 sessions before going home, would be nice in a few weeks to to talk about SBRT as it was mentioned at my recent MDT meeting as a possibility, best wishes to you both, take care.

    Eddie

  • We had a quiet weekend, just pottering round the block and in the garden. No more sightings of the tortoise but plenty of birds, including 2 magpies (for joy).

    Hubby tried to stop the antiemetics but found he needed them. I am going to try and get a different one today which doesn't cross the brain/blood barrier and will be safer for him considering his age. Apparently the nausea is a recognised side effect when the upper abdomen is being targeted. I will keep you posted on the SBRT treatment and let you know his progress. He has to have an MRI in 2 months time to monitor shrinkage and I will organise regular blood tests. His other main problem is the fatigue which has really hit him so more stops to sit down on his seat walker, but he is still determined to keep moving. According to the literature SBRT has a 98% success rate in treating the lymph nodes being targeted, even 10 of them, especially as they were identified by PSMA PET CT, and has a 7% chance of causing GI or other side effects which to me seem pretty good odds. If recurrence occurs then it is usually in another area.

    Couldn't find the breadmaker but have sourced one on the internet so I will order it when I get home.

    Had news about a friend who has terminal brain and lung cancer, diagnosed at the same time as hubby in 2020 and treated with Cyberknife and immunotherapy, now has liver mets. He is having another course of immunotherapy. Like hubby he was originally given possibly 6 months, but, like hubby, is not going down without a fight. 

  • Kali Mera,

    Hope the last 2 sessions go well.

    I like the 98% success rate stats.

    Steve (SteveCam)