Hi All,
First two months of HT treatment, husband PSA an testosterone dropped nicely and today it went up a little instead of carry on dropping. This is only the start of journey for us so I expected further falls and not upwards ( even little, testosterone from 1 to 2 and PSA from 0.52 to 0.54) I know it is not much increase but the direction is not the right one.
Anyone experience similar issue at the start of the journey ( 3 months)
Lots of love
Dafna
Absolutely. If he lived in this country I would march him to the GP! I’ve been nagging him for 18 months and the stock answer is he is too busy!
Well, we have a plan now. Talked through our options and yes there are more options. Whilst in the Greek Gods office he phoned the radio oncologist and they agreed that SBRT could still be an option to the distant lymph nodes as the chemo has shrunk them. Hubby is a good candidate because the original EBRT to the prostate worked so well. So he has another PSMA PET CT next week then a discussion about possible SBRT starting the following week. At the same time he is getting the biopsies checked for possibility of gene therapy. Also, because hubby has already had chemotherapy it can make immunotherapy more effective but this option is being left until after potential SBRT. No more chemotherapy for a while. As hubby has already had Bicalutamide and Enzalutamide then Darolutamide is a possibility but not at the moment. The intention is to try and get rid of as much of a cancer in the lymph nodes as possible rather than trying to keep it in hibernation.
We have a few weeks of treatments ahead of us again but then, hopefully, a summer off.
Bless the "Greek God" - it looks like he's in control and knows just what he's doing. I hope the extra treatment isn't going to involve long trips across country.
It's weekend now - and as you have a plan relax and celebrate - once I have burnt some baked spuds (washed pierced, covered in olive oil and a sprinkling of salt) with tuna (I am not a bad cook but my Turkish oven has a mind of it's own) I will toast the treatment plan with a glass(es) of Raki on my balcony, - it might be cold but who cares, fresh air and I am on holiday.
My best wishes to both of you and my personal thanks for all the support you provide on the forum -- it's not gone un-noticed -and as we are busy at times it takes the pressure off me to respond - and more so as some of your replies are better than mine!!
Thanks again - Brian

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Thank you so much for your lovely words Brian. We have definitely heaved a great sigh of relief but it will probably mean having to spend a couple of weeks in Athens.
Enjoy your Tuna jacket and we will join you tonight with a glass of very good whisky across the water.
AW,
Wow that sounds really positive, clearly the Greek God is up to date with all treatments, not just something good to look at
L
Hi Ah
This i looks like a very solid plan! Are you both feeling better now?
xxx
Dafna
Yes thanks Dafna. It's reassuring that we still have options for some time to come. Had a real laugh with the Greek God. He knows that our treat is a glass of whisky twice a week so went to his cupboard to get a nip out for medicinal purposes. Problem was the bottle had gone - apparently his brother in law had been into the office decorating it and treated himself to the perk.
This all sounds very positive. I think perhaps we should all move to Greece :)
I think the system works well here because it is a mix of private and public health in a competitive market, so treatment is in a private hospital but partly paid for by the NHS. Unfortunately for those reliant purely on the NHS equivalent it can be a different story e.g. our regional hospital has had no oncologist for the last 4 months because they are off sick, plus it doesn't have the most up to date equipment. The disadvantage for us is that for the best treatment we have to travel to Athens which is 4 hours away, although the Greek God has an office for appointments once every 2 weeks in his local office an hour away.
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