Hello,
I wondered if anyone has had any experience taking abiraterone, specifically the range of side effects.
My dad started taking this a year ago. He was fine until spring this year when he started feeling very tired. It was manageable though.
He has had a tough summer as the range of side effects has intensified, extreme fatigue, muscle aches and pain, loss of appetite etc. To the point, he couldn't really leave the house for a few months.
His prostate cancer is well-controlled and he has had various scans (bone, dexa, CT) to check if there is anything else going on and is is all clear.
He was advised to stop taking the abiraterone at the end of August and most of his symptoms have slowly improved.
However, he is having major issues with pain/weakness in his arms. So much so that he can't lift them and just getting something out of a cupboard is difficult. He has no strength in them and is finding it extremely debilitating. He pretty much can't use his arms at all.
We are not really getting any answers from the medical profession on whether this is a normal side effect of abiraterone and will eventually go away or whether there could be something else going on. He is getting a blood test for polymyalgia this week to see if he has that.
I wondered if anyone else had had a similar experience with abiraterone and could offer any insights. Or know of any medical conditions that might mean his arms don't work?! It's very strange, he'll have an occasional day where they feel much better and then they are back to being bad again for another week or two.
Thank you
Hi Robert,
Think of it as the new office, My partner has a touch of IBS so he likes to hang out in there anyway. I often hear him making an important work call as I pass by the door. Think it's called multi tasking.
L
Hi WW,
My friend swears blind on the healing properties of dried Gogi berries and cancer. Her daughter had a nasty cancer in her knee joint which was removed with a margin. At the time she pretty much bought up every possible supply of them, this was about 20 years ago when they weren’t so readily available . Now they are easy to get. As far as she’s concerned they are a miracle berry. So I rush out to get a mega bag at OH’s pc diagnosis. Insistent that he snacks all day. He stuffs his face and loves them. Day 2 …”sh***ing through the eye of a needle!” His words not mine 
so stopped… But now I think about it may have to revisit the idea of the Gogi berry as they really are jam packed with good things, maybe monitor the intake though.
Lx
*Maybe one to check with Dr as could effect meds
