Husband suffering with muscle pain

Hi, 

My diagnosis is similar-ish to your husbands and my treatments too  (it's all on my profile),  and I too get aching muscles , and bones  (I'm pretty sure it's a common side effect),  but it's mostly after relaxing or not doing much, and I too struggle initially to get up, but once I'm out walking or at work (Floorlayer) it subsides a great deal, also getting out of bed first thing in the morning is a mission... Exercising as much as possible,  and weight training will help a lot, and if You are not aware already Calcium +Vit D supplements are a must... Your husband is doing really well,  that's a great response to his treatment, I assume he's being treated with curative intent? ...

All the best going forward...

Jay

Like Eikcorb says it’s part and parcel of the treatments affects.

Im 61, Gleason 8 (originally) and have had chemo pills and intravenous over the last three and a half years. So my pathway is similar.

My legs are especially achy and I spend a little time rubbing the affected muscles. The back of my upper and lower legs are worst. Every day I’m rubbing them before I get out of bed and after a long day. Do it any time.

As said above there’s possible remedies that might help but moving about is best.

Im pretty sedate right now and I have days in bed, but I love getting out and about and using those muscles I still have. Most of which have wasted because of inactivity.

Good luck

Thanks jay, he is on calcium tablets and a multi vitamin, yes they said it was curable even though a Macmillan nurse told me it wasn’t but he has had a great response to treatment, he found chemo much easier than radiotherapy and this aching only started 2 weeks ago, so 2 weeks after radiotherapy finished. He seems to go downhill through the day so that by the evening he can barely get of the sofa, dosent like brufen as it makes his tummy a bit dodgy, thankfully those side effects have calmed down a bit, thanks for your reply , appreciate it

Thankyou for your reply, I think this will be something he has to live with, he is hoping it will get better over time as we cant afford to retire, I know the doctors say to rest, take time off etc but having our own business has nearly crippled us financially and unfortunately not any help for small businesses but we carry on hoping it will get better and the side effects will ease a bit, appreciate your reply

I’m technically still an employee of the company I’ve worked for these last 14 years.

As you have found out there’s no help for anyone with cancer specifically and if you have any savings over 18k you are not eligible for much help at all.

Don't despair, try and turn over all those stones again to get financial support.

I was not au fait with the benefit system so not able to see how to ask for help. It’s taken a hospice to place me on SR1 status and suddenly I’m allowed PIP benefits.

So keep looking and ask on here to see if there’s any corner of the tax system that could help you both. Don’t give up, keep trying.

Good luck

Hi Terrified wife  you mentioned 

Terrified wife said:

I know the doctors say to rest

But to me you need to push yourself when you can.  If you feel good, then do more.  If you feel tired rest.  Listen to your body is the main lesson.  It is counterintuitive but exercise is good for fatigue.

Thankyou, will keep teying

philippa 

Should say trying

Yes exactly right

thank you

philippa

Hi Terrified wife . Sorry to hear of your husband’s muscle pains. I have only had radiotherapy and, so far, 16 months of Zoladex hormone therapy but I do recognise his symptoms of aching muscles. Getting moving after sitting down can be stiff and slow, but once I have started moving for a few seconds  it eases off. If we went out for a walk it did take a few minutes until my legs felt like I was fully in control of them again! As well as lifting weights, I started carrying weights up and down our house stairs a few weeks ago, to try to exercise and strengthen the aching muscles.

We have just returned from holiday where we were walking probably 6 or 7 miles each day, plus climbing a lot of stairs. My legs do feel stronger and I noticed yesterday leg aches have subsided and walking is much easier. So as others have said, it looks like regular walking and strengthening exercises, even when you don’t feel like it, will help after a while. If no improvement, a chat with his GP might be worthwhile…