Surgery or Radiotherapy? Decision made!

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Decision made.  I’m pT3a, N0 M0 (see my profile for details ).  My extensive research points to a combo treatment of HT / RT / Brachy (NHS and NICE approved).  MDT met again a couple of days ago and their recommendation (without my input) was the same.  I had a consultation at Addenbrookes yesterday with a top prostatectomy surgeon and he agreed with me that my decision was the best one, as surgery would carry at least a 30% chance of recurrence.  So I collected my prescription on way out!   I took my first bicalutamide tablet taken this morning…..so the treatment is underway. Just over 62 days (NHS target) since GP referral so well done to them after a thorough diagnosis.  I feel like a weight has been lifted from my shoulders with regards to timelines (chasing the NHS, politely!), but I’m under no illusion that the next few months of treatment will present challenges.  My wife and I are a strong team and we intend to take everything in our stride and, hopefully, this curative pathway will prevail.  Here we go…..wish us luck! 

  • Hi  , we all have different levels of side effects but your main focus on being cured should outway the short term pain.  Keep positive and be inspired by AW.  David

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • Quite right David and thank you Pray. I had contemplated ceasing HT early but this would have been short sighted. I’m determined to stay the course 

  • Many congratulations AW, I am so pleased for you, Keep on Keeping on.

  • Hi ya 

    That's great news,I'm really pleased for you  

    all the best 

    Peter

  • Hi AW,

    Well, that is great news to read - you must be chuffed to bits.  Keeping fit with lots of exercise with all your walking is certainly helping, & you ongoing post is a really positive message for anyone who starting out on this journey.

    Best Wishes

    Brian 

  • Hi  - do you mind me asking - could you tell me what and when your latest PSA reading is?  The last one in your bio says 0.38.   AW

  • Hi AW,

    The last result from early Jan 25 was 0.29 which the Oncology dept stated was encouraging with no further action.  Won't be long before I get the another invite for the next blood test.

    Your message has reminded me to update my profile Slight smile

  • Hi  - thanks for the update. We still have our prostate glands and these will produce some PSA as they recover from the effects of radiotherapy, so your result is excellent. You have been off hormone therapy for some time now, so a figure of around 0.2 and still dropping is great news.  AW

  • Morning all!  I haven’t posted an update on here for over a month, so here it is.  Not much to say though (good news):

    it is now nearly 6 months since my last Prostap jab, so I’m still waiting for my testosterone (nickname “Tommy T”) to return.  I’m curious as to how things will change, as I am in my 21st month “under the Kosh” of hormone therapy.  Bedroom activity has continued throughout but, of course, in a different dimension: less frequent, no libido but - crucially - no erectile disfunction. So still loads of fun and - importantly- close times.  I’ve been on 5mg of tadalafil daily throughout, so no noticeable atrophy. 

    So, is the waiting getting me down?  No - seriously- all is fine (no libido, remember).  A lot of you will also recall that Mrs AW and I are both mountain guides. We depart for the Dolomites tomorrow (2 weeks) then Austrian Alps in July (2 weeks) and Austrian Alps again in late August (3 weeks), and fatigue has not been a player in my HT side effects.

    What about other side effects? Well, I started typing this with a tee shirt and fleece on….and now I’m shirtless- so yes, I still get hot flushes. Probably 2 at night (coinciding with getting back into bed after a pee, also 2 in the night).  Happily, Mrs AW and I each have a single duvet (Austrian style) on our super king bed, so no issues with waking her up by throwing off the duvet for a few minutes whilst I cool down.   Oddly, I rarely get a hot flushes when out hiking.

    So, that’s about it.  I will still check in here whilst away ( in the evening) no doubt.  In the meantime, look after yourselves - the medical profession has got our backs.    Right, time to put my tee shirt back on…..AW

  • Cracking post  and thanks for the update. You and Mrs AW are doing great and it makes fantastic reading.

    On a personal note I am not sure if the early return of "Tommy T" is a good sign - after 3 years on HT - I was back to "normal" in 3 months. I understand Christies are doing a Testosterone test as they have some of my blood so I will let you know how high it is.

    Enjoy the Dolomites I will be thinking of you whilst sat on my balcony in Turkey.

    Thanks again for your support on the Community - it's very much appreciated.

    Kind Regards - Brian.

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