Decision made. I’m pT3a, N0 M0 (see my profile for details ). My extensive research points to a combo treatment of HT / RT / Brachy (NHS and NICE approved). MDT met again a couple of days ago and their recommendation (without my input) was the same. I had a consultation at Addenbrookes yesterday with a top prostatectomy surgeon and he agreed with me that my decision was the best one, as surgery would carry at least a 30% chance of recurrence. So I collected my prescription on way out! I took my first bicalutamide tablet taken this morning…..so the treatment is underway. Just over 62 days (NHS target) since GP referral so well done to them after a thorough diagnosis. I feel like a weight has been lifted from my shoulders with regards to timelines (chasing the NHS, politely!), but I’m under no illusion that the next few months of treatment will present challenges. My wife and I are a strong team and we intend to take everything in our stride and, hopefully, this curative pathway will prevail. Here we go…..wish us luck!
Brilliant news for you both! Really pleased for you!
sorry to be late to the party - just had 36 hours without internet! Had not realised how much we depend on it now! Stupid thing was that internet providers asked us to email video of router over to them! How? ( phone mobile data not working properly either!)
Enjoy your weekend? Are you on your travels or back in the UK?
Your internet provider wasn't the Met Police was it ??
Hi Andrew, it looks like your treatments are doing a wonderful job, I'm sure you meant HT jabs my friend, and your remaining ones along with the radiotherapy will continue working for up to 2 years, so everything's looking good for cure.
The main reason your cancer,"may," return is that occasionally one of two stray cancer cells might have gone walkabout before treatment started, unlikely, but if so as their undetectable now, it's going to be a long time if/when they are detected and your team will be ready for them.
Eddie
Just back from two weeks hiking in the Bavarian mountains. AW
Hi @badger1234
Eddie has already provided an excellent response to your question. Yes, the cancer will have killed itself when it tried to duplicate and make new cells, due to its DNA being altered irreversibly by the radiotherapy. The HT deals with any potential microscopic cells by starvation and weakens the cell lesions in the prostate area before they are irreversibly damaged by the radiotherapy. So nothing should cause it to return in your lifetime, unless a more significant breakaway of rogue cells happened before your treatment. However, your MDT will have assessed this as unlikely. Notwithstanding this, even if there were residual breakaway cell groups, you would be likely to die in old age with them , rather than because of them. Hope this reassurance helps. AW
Thankyou both for the insight, quite comforting after the last 9 month journey since my original diagnosis.
Hi @hopingforthebest
I’ve just read the latest in your bio: brachy boost not too far away now! Hope my latest news gives you some encouragement. AW
My diagnosis was the same as yours, a fall down some icy steps saw me visit my GP, , a blood test, )PSA6 an examination, MRi scans , biopsy and a few more tests and I was on my way, here in Scotland we really do have a postcode lottery, I was told that radiotherapy and hormone treatment was what I would get, no other choices.
I started on hormone therapy and at 6 months started 4 weeks radiotherapy, the radiotherapy finished at the end of the first week in December.
Today I am in the middle of my third, 6 monthly, hormone injection and gave just received the results of my third, 3 monthly PSA, all three have been 0.16, my Urology nurse practitioner says it means it's undetectable!
My only problems are the effects that the Hormone therapy has had on me, muscle loss, hot flushes, problems with my joints and tendons and soul destroying legathy, if Ido anything physical for any length of time I'm done and retreat into the house and sleep, I'm asleep in minutes.
But I am coping, a monthly visit to a support group helps me clear my head which is a blessing.
I still ride my small motorcycle, but the distances I used to ride.
As things go though I am 4th eldest in a family of 7 children, but there is only two of us left, all died early, I have reach 77 while my little sister is 62.
So as Brian said, well I think it was him," always look on the brighter side of life"
My best wishes for your future, when I entered the waiting area for radiotherapy there was 7 people sitting very quietly waiting, I sat on the only chair vacant, next to an elderly lady and asked us it always as quiet as this, yes she relied , no one wants to talk, I changed that, within a week everyone was talking to each other.
I waited for the result of my first three months PSA test, nearly a month passed so I rang the Urology department and asked if they could tell me the results, to my astonishment I was asked why I would want it, why would I not want it, so was told the result with a promise that a letter would be sent out to me and my GP, my latest PSA test was as I said early three weeks ago, I had to ring the Urology department again, third time, why would you want to know the results, ROFL, you cannot win them all.
HubSafeways
You are so right Scotland is a lottery.
My OH was well over the cancer fast track and after a complaint to the first minister he replied get in touch with MacMillan while you wait.
He also was given no choice and is on HR for life and had 6 blasts of palliative RT as he has one lymph node that they won’t touch. His PSA is undetectable.
we had an awful time trying to navigate through the bulls… before we actually saw any consultant .
We have a great Oncologist now after we had a heart to heart as he also started off on a need to know basis . We needed to know everything whether it be good or bad.
best wishes
Liz & OH xx
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