Surgery or Radiotherapy? Decision made!

  • 705 replies
  • 208 subscribers
  • 48832 views

Decision made.  I’m pT3a, N0 M0 (see my profile for details ).  My extensive research points to a combo treatment of HT / RT / Brachy (NHS and NICE approved).  MDT met again a couple of days ago and their recommendation (without my input) was the same.  I had a consultation at Addenbrookes yesterday with a top prostatectomy surgeon and he agreed with me that my decision was the best one, as surgery would carry at least a 30% chance of recurrence.  So I collected my prescription on way out!   I took my first bicalutamide tablet taken this morning…..so the treatment is underway. Just over 62 days (NHS target) since GP referral so well done to them after a thorough diagnosis.  I feel like a weight has been lifted from my shoulders with regards to timelines (chasing the NHS, politely!), but I’m under no illusion that the next few months of treatment will present challenges.  My wife and I are a strong team and we intend to take everything in our stride and, hopefully, this curative pathway will prevail.  Here we go…..wish us luck! 

  • Excellent information. Helps manage my expectations. I was hoping for a speedier return of testosterone but hey ho, here we are. I’ve not had a great time on HT, bone pain, dizziness and more. Hideous but life saving. So I’m grateful. Roll on spring 26 Blush

  • Hi  - well, my fellow brachytherapy boost brother, that’s a positive outlook, despite the difficulties that you have encountered. So far, my body has  tolerated HT very well and, for that, I am also grateful (and I hope it stays that way until the HT agonist is out of my system). When making the decision about treatment each man should decide on probability of success.  He should try to keep the shock & fear that inevitably accompanies the initial diagnosis at bay, and concentrate on the statistics from previous large trials. My oncologist pointed me towards the ASCENDE-RT study (actually, I had already read it!) and this well respected trial did much to sway my decision. However, every man is different and he (and his partner) should decide what is most important.  For me, the top side effect that I wanted to avoid was urinary incontinence. The top outcome, of course, was the treatment with the least chance of recurrence. Balancing the two is, as  always says, best done by writing down the pros and cons of each treatment on paper and taking time to decide what offers the best outcome for you & your partner. We have no regrets.   AW

  • Morning all,

    I was just reading the exchange this morning about the T and how you all want it to come back follow HT and go back to normal activities. For us is the opposite hope! We want to keep the T down so Jacob will keep living. Every 3 months when the PSA come back I am just closing my eyes and open again and trilled with <0.01 T.

    Funny how we all hope for different results! No doubt some members share our sentiment about it.

    Lots of love

    Dafna

  • Morning Dafna,  I'm with you my friend, just wanting to keep the bugger down as long as possible, but enjoying life in the meantime,

    love Eddie xx 

  • Latest Blood Results are in and PSA is undetectable again (<0.03, which is lower than the diagnostic machine can measure). My testosterone is on the rise (albeit only from 0.5 to 0.9 so far).  It is over 6 months since my final 3 monthly jab, so it’s good to see Tommy T is on his way back (Woo-Hoo!).   My neutrophil/ lymphocyte ratio (NLR) has reduced again, which is usually indicative of a favourable prognosis. Very pleased Grin.   AW

  • Absolutely wonderful news. Well done AL Clap Muscle

  • Amazing news . What a great start to the weekend . 

    best wishes to you both 

    Liz & OH xx

  • Hello  

    Just a cracking result - all you need is an increase in the old testosterone recovery and you should be back to square one!

    I will raise a glass to you and Mrs AW tonight - I hope you don't mind it's raki as I am in Turkey (and it was 44c today!!) so it's not my first. SunglassesInnocent.

    Long may it continue - Oh - and thank you for your continued help amongst the Community - you are a Star2.

    Kind Regards - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi

    We have spoken previously. I completed my EBRT 20 fractions at end of April. Just had my 3rd HRT jab.

    My PSA level is down to 0.03. Another 9 months of HRT left.

    Quick question as I know you are knowledgable on such matters. When the HRT stops, my consultant says the aim is to keep the future PSA levels below 2.

    In my current position, has the EBRT and HRT etc effectively killed the cancer? Do we know what if anything would cause it to come back at any time?

    Regards

    Andrew