Having a good day today. Yesterday was husband's 5th chemo session. He is sitting next to me with a chemo flush, the chemo fog and I am waiting for the chemo f**t as he has to take Duphalac for constipation after chemo. It's a bit like having Dopey and Happy all rolled into one.
As many of you know we were originally told that he may have only 6 months but here we are over 3 years on. The oncologist came up to us yesterday, slapped us on the back, shook our hands and with a big grin said that the chemotherapy was working way beyond their expectations (he is rather dishy). They have reviewed his case and now decided that after the chemo they are going to leave him on the Leuprorelin but stop the Enzalutamide to see how it goes. In his words the bloods are excellent, better than most on chemo or a healthy man with the exception of the creatinine caused by the CKF. PSA reduction exceeded the targets after 4 cycles of chemotherapy . Significant shrinking of mets and no visible spread anywhere else. Scans again 1month after the final session on the 11 th October, 2 days after his 80 th birthday. A day we.never thought we were going to celebrate.
First f**t has just erupted!!!!
It was interesting what Brian said that 70% of posters are women. Possibly because they are more willing to open up and sharing. Like many I was a lurker for a long time and got so much information but overall it was the support that so many of you showed that got us through our darkest times so a big thanks to all you stars out there for getting us this far. Having a grade group 5 is pretty devastating but we are determined to continue to exceed expectations for as long as possible. I am sure our sense of humour and attitude helps. Alex (dishy oncologist) and his team say they have never met anyone like us We have every confidence that when things start to go pear shaped, which they will, then Alex will be on top of it very quickly.
Hope this gives a little support to those in a similar situation and to stress that a positive attitude is essential as it releases the bodies endorphins which helps the healing process.
Cracking post and so positive, it's great to read and I am so pleased for you both. I am 105% convinced (I only just got my maths O level and I am an accountant!) that a positive attitude is half the battle with this cancer. I feel for you both and I love to read positive stories on any thread.
On a personal note, I have increased my medical knowledge since you have been posting - so a thanks from me!!
I am told that for every poster on a site like this there are maybe 12/15 people who read the posts but never post - so not only are we helping our "little club" we are also helping the wider Cancer Community who read the post and benefit from the information (The are no doubt all left wondering why we are all going to the "sunbed shop"!! .)
I can almost count myself in that 70% of posters - being on the manopause is no joke but after 20 months I have stopped having hot flushes, no more itchy skin, my "boobs" have settled down and I still like shopping at Next!! It's a fact though, without the support of you ladies, we men wouldn't be where we are today without your support - so a big thank you to you all from me!!
Well done to you all.
Best wishes - Brian.

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Thanks for a wonderful upbeat post. I'm so pleased that you're having a great day. I'm currently in remission but still have bad days and it was really good to read your message.
The fridge is the first place I look when hubby has misplaced something. Usually his phone or keys - perhaps they associate it with trying to cool down when they are having a flush.
We have been bopping around to Queen this afternoon on our top terrace to boost his endorphins. Cheers from the neighbours who think we are mad English anyway. Thumbs up from his chiropractor who can see us from her practice terrace. We live in an olive grove so fortunately do not have too many neighbours watching us making fools of ourselves. Just blame it on getting old.
Ok - so! Since starting HT my husband seems to have forgotten how to shut the fridge door!
Brilliant news fir you both! Onwards and upwards and I hope you have enjoyed your good day and wish you many many more of them!
We are making the most of it. The steroids with the chemo give him more energy but for the last 3 weeks he has had less pain and has been in a lot better place physically and mentally. We know that on Saturday between 11:30 and 12:00 the side effects of the chemo will kick in with bone and muscle aches and will last for 2 days, then diminish for another 3 days. I am hoping that coming off Enzalutamide for a while will reduce some of the side effects you men have to put up with.
It is definitely onwards and upwards for the winter. That is one of the advantages of living here in that our winter daytime temperatures average 15C and nights get down to 8 -10C and we do not experience the days of rain that you get in the UK. We don't need central heating but do have a log fire in the living room which is lit in the evenings from Christmas to the end of February. A disadvantage is that the garden grows all year round so I am still mowing in January.
No champagne just yet, will keep it on ice for the end of chemo along with the really good bottle of single malt. I think hubby has enough alcohol put through the IV every 3 weeks.
As for Alex, definitely a 9 but what do you expect from a tall, dark, handsome Greek God. Now his son at 19 certainly has the makings of a 10. One can but dream
Typical - We set off on a serious conversation and then you lot go off the rails just because some Greek bloke looks fit!
I would post a picture but I don't have a wide angle lens for my camera!!
It did make me chuckle though!!

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