Going down the chemo route

  • 14 replies
  • 171 subscribers
  • 1125 views

Following our appointment with the oncologist on Friday, my husband has decided to fight with all guns blazing and start chemo.  His second hormone injection is on 4th August and in tandem with that he will have darolutamide and docetaxel (I think) starting possibly as early as this week.

It's all a bit frightening but he's done his research and is definite that this is the way he wants to fight.  What bothers me is that I don't think he realises how careful he will have to be to avoid infection.  We run monthly quiz group with over 40 people attending.  He is quizmaster and absolutely loves doing it.  If he wore a mask and kept his distance as much as possible, would this still be okay?  Also we go group walking every couple of weeks, ending in pub lunch (about 14 of us) and once a month we meet up with over twenty friends for lunch.  I feel that we should stop all these activities but he thinks it will be okay.

I think the cancer nurse is ringing him this afternoon so will try and get him to ask her but would welcome your comments please.

  • Just a quick reply to wish you both well and I am so pleased he has taken this option. I do hope all works for him and the side effects are minimal.

    Unusual for me but I can't stick my ore in about mixing with other people - it's not my pay grade - but I am sure someone will pop by with some sound advice.

    Good luck with it and keep us posted.

    Best wishes

    Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thx, Brian. It makes such a difference to know someone's out there!

  • My husband starts chemo on 4 August and I asked the oncologist about infection. We have decided where possible to avoid people even if we know them well. I won't be letting him do any gardening due to bacteria and certain foods that can't be cooked, eg salad will be off the menu. I shall be watching him like a hawk. If we go out and can't avoid people he will wear a mask. Today I bought lots of hand gell and wipes. Ok we might be restricted for a few months but I would rather he be safe than sorry. Let us know what the nurse says. It looks like your husband is having the same treatment will he also gave chemo into his vein every 3 weeks 

  • Hi Lyon,

    I like his style, "All guns blazing," Positive and strong attitude. Don't stop him, I'm sure enhancing that inner strength of character signals, and releases something good in your mind and body. It's the best way to be....Release the warrior!!!!!

    LRelaxed

  • Hi Shar

    Thank you so much for your input. Is this what the oncologist recommended  or what you've decided between you?  It's  really brought home to me hiw restrictive this could be.

    The nurse hasn't cone back to us yet, but I will certainly let you know what she says. Up until the weekend my husband wasn't  really considering chemo so I'm  not sure about the details yet.

    I think we're  both in for a difficult spell but, as you say, it will all be worth it 

  • Oh, you really made me laugh, Barry!! Just what I needed!

  • Hi again Shar OH spoke at length to nurse yesterday but she was very non committal regarding precautions against infection during chemo- not her field, apparently, but said it was really a matter of common sense. He will be assigned a chemo nurse very shortly who will advise.

    Having ecg next week and collecting drugs from hosp which are taken before chemo starts (via canula) in a couple of weeks.

    Loads of masks arrived from Amazon yesterday and, like you, we're well stocked with wipes and hand gel. Tough time ahead but at least we've had experience of lockdown.

     I hope all goes well with you and your husband.

  • Good Morning Lyon & Shar

    Well it looks very much like you two are going to be sharing a journey together - it's good that you both have someone else doing the same thing as you can both use the experience of the other to help. (I know it's not where you both want to be - however you are on the treatment path).

    May I wish you both and partners the very best and I hope everything goes to plan (we could start off by getting Shar a new Oncologist!)

    I know you will keep us up to date with your progress and you know where we are if you need anything.

    Best wishes

    Brian Thumbsup

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • The oncologist told me I didn't have to live in a sterile home and be cleaning all the time. I told him that was a shame as I loved my show house. He said bacterial infections are worse than viral and it was him that mentioned gardening. I have read so much conflicting advise as to whether you can for example eat salad due to bacteria even if throughly washed. We are going to air on the side of caution and if it hasn't been boiled or roasted to within an inch of its life then it won't be going on the plate. So sorry you are in the same situation as we are but at least we can share with each other our experiences as we go through this x

  • Thank you Brian, it is good to know,(but not really) that someone else is the same boat as us and that we can support each other. I love the bit about the new oncologist. Nothing in life gets the better of me and this oncologist won't either. I had a car servicing garage closed down once for treating me badly. I reported them to the department of transport and the vat people. They were closed down 10 days later. Pensive