My husband (at age 65) has been diagnosed with metastatic prostate cancer. His PSA was 281 and it has spread to his pelvis, spine and lymph nodes.
He was in a lot of pain and could hardly walk, but he started on pain relief and Degarelix injections which worked well and his PSA came down to 9.5. He was almost pain free and could get 'back to normal' He has had several scans and eventually a biopsy (after waiting months!) and now awaiting the gleeson score.
His choice was either apalutamide tablets or Docetaxel chemo, but after seeing me go through chemo just months ago (for breast cancer) he didn't fancy the idea and has decided to postpone that as a second treatment when apalutamide stops working.
Last week he had bad palpitations and raised blood pressure /rapid pulse.and ended up on a 24hour heart monitor. Does anyone know if this is an effect of the apalutamide medication? So now he is on blood pressure tablets too
I'm on here as I'd like to find out how other Guys are coping with similar treatment and circumstances, to be better able to support my husband. Although to be fair I really should be recovering from my own journey with the big C. Its tough having both of us as regulars at oncology but having been there so recently I feel I'm in a better place to guide him through his own experience.
My GP's misdiagnosed him for well over a year, when perhaps the prognosis may have been better, with a curable outcome. I suspected his diagnosis long before the GP did and had to push them to investigate properly. I now have the worry about my husbands illness and treatment and an uncertain future, plus making a formal complaint about a whole series of errors made by the GP and the hospital....but that's another story. My main concern is his treatment. Hoping for some positive or helpful comments from the guys on here.
