Hello I received my full pathology report a few weeks back after my robotic prostatectomy. This week I’ve got my first appointment since my operation. Below is my report
acinar adenocarcinoma
doninant nodule left side 30mm 3+4 =7
smaller foci 22mm 3+4 =7
extraprostatic extension - No
bladder neck - No
seminal vesicles involved- No
margin status involved
extent - <3mm
gleason grade at margin 3
involved location- apical, left side intraprostatic
summary 3+4=7
grade group 2
stage pT2c NX
can any one suggest any questions I need to ask my consultant when I see him this week?
Can any one give any info or advice on the report?
should I be pushing for salvage radiotherapy with having positive margins
amy one had a similar outcome after there operation.
thsnks in advance
Gary
Hi Gary73 ,
I am probably not the right person to answer this but I have noticed that if you get a quick response other people pitch in.
So, what I did is use Microsoft's Copilot AI to explain the information you had received in layman's terms.
I'm not going to reproduce the answers here because in terms of trusting the AI output I think everyone needs to make up their own idea. However, I have found that using them to simplify technical output is pretty effective.
There are a number of free AI's that you can use to do the same thing. All you have to do is to copy the text as you have above and ask you to explain them in layman's terms.
You will get answers you can understand.
Having done that myself I think it will point you at the questions you need to ask. Remember that this is a search and explain tool, not a medical expert.
Your question about salvage radiotherapy is a good example. You will find that the translation will expand on what the mention of surgical margins means, and not what to do about it. The consultant needs to answer your questions about it.
I hope I have helped and not hindered.
Steve
Changed, but not diminished.
Hello Gary (Gary73)
Not medically trained and still the owner of most of my prostate (various medical people keep helping themselves to bits!!).
The important bit to me is "margin status involved" which I understand they didn't get all the cancer.
I would be asking when are they doing your PSA tests and if they are rising what do they propose to do regarding the cancer remaining.
I hope this helps.
Best wishes - Brian.
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Hi Gary73 , also not medically trained but have been on this journey a few years. My thoughts as follows - the majority of the cancer has been removed but there is a chance that it had already got out. This isn’t unusual and can be easily treated (generally with RT) to catch the escapees. There are no guarantees with any cancer treatment that they can be 100% effective and the current thinking is to go hard at the little buggers to remove totally. Your consultant should be able to give you a plan (or pass you to another consultant) who will attempt to eradicate any remaining cancer and the phrase ‘with curative intent’ should be used. Please let us know how you get on and feel free to ask any questions. David
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