Hi Redman, so your on active servalance, the cancer must be slow growing, not a bad place to be, don't worry action will be taken when necessary, there are guy's on the group who have been on AS for year's, I'm sure they will come on.
Please remember we are not professional just experienced.
Twitcher, I was on surveillance for 4 years, then last year my PSA levels were 12.9, they had me in, MRI, Biopsies, Bone Scan. The result I was a Gleason 3+4(7), Intermediate Risk. Had the choice of Hormones and Radiotherapy, or do nothing.
Now, 16 months after the initial diagnosis I am in Remission.
So they know what they are doing. If your PSA levels reach a certain point they will get you in (mine was if it reached 9 on 2 consecutive occasions).
This is a great forum to be part of, you will learn a lot. Try reading people's Profiles, you can get a good insight into what some of us have been through.
I was on Active surveillance for 4 years, then last year my PSA levels were 12.9, they had me in, MRI, Biopsies, Bone Scan. The result I was a Gleason 3+4(7), Intermediate Risk. Had the choice of Hormones and Radiotherapy, or do nothing. Not really a choice.
Now, 16 months after the initial diagnosis I am in Remission.
So they know what they are doing. If your PSA levels reach a certain point they will get you in (mine was if it reached 9 on 2 consecutive occasions).
This is a great forum to be part of, you will learn a lot. Try reading people's Profiles, you can get a good insight into what some of us have been through.
How often will they be testing you? Personally I would want a formal plan going forward - or example, every 6 months. I would be concerned that they might forget me.
I agree with you about a plan going forward. Recently I had my first telephone appointment with my oncologist post radiotherapy. The following day I received a letter stating my next appointment date for 6 months time and a reminder to have a blood test a week prior to the appointment which she has also booked.
Redman, make your own Doctor's appointments for the testing. If they get funny with the "Oh it's not my job, attitude", tell them you have an appointment with the Oncologist 2 weeks later and you need your PSA levels checked.
That's what I am having to do. I have the 'Airmid' app on my phone and the last time, I got access to the results the day after the blood test.
Couldn't agree more. I manage everything that I have any control over - kind of what I did for a living. The only thing I have missed so far was the calcium/vitamin tablets. I excuse myself on this 'lapse' as I wasn't aware a scrip had been issued.
