Hi, anyone on forum heard or experienced immuno therapy?
Hi Troxley
I am not an expert on the subject but believe it is not normally available on the NHS which tends to offer a standard form of treatment, often comprising hormone treatment, chemotherapy and radiotherapy.
Having had all these treatments, I have been fortunate enough to be offered 2 trials involving immunotherapy at a specialist cancer clinic. This normally involves the use of a mixture of chemicals which are set up to make the body fight the cancer cells.
I know you are looking for treatment without too many nasty side effects and I can honestly say that the trials were very good in this regard. You have nothing to lose by researching and pursuing a suitable trial.
Unfortunately, this didn't work for me so I am probably back to chemotherapy but not at all keen on the side effects.
Your best bet is to talk to your Oncologist but I would say that it is not the silver bullet we are all looking, and hoping for, although there have been some very successful outcomes in various cancer cases.
Best wishes,
Andy
Hi andy
Just read your profile,
Wow, good work on all the trial drugs.
I'm just trying look at least side effects as possible.
Obviously things to kick in or trick our own immune systems to reverse what's already been started by mothother nature is obviously the holy grail(for me!)
Mother nature's kicked me in the prostate and it's like whack a mole with the grim reaper....
Wonder if even right to think can out live mother nature's process???
Looks like you doing great job of exploring everything
What age are you?
Have you tried CBT with other bits n bobs in it yet?
Hi Troxley
I was first diagnosed when I was 65 but I have just had my 70th birthday which is a real bonus for me as the prognosis
I was given was not as optimistic! I intend to battle along, trying to keep life as normal as possible and having holidays to look forward to.
I haven't tried CBT's but am aware of their existence and use.
I think that my cancer, which is in my lymph nodes and bones, is being held back back by 3 monthly hormone injections and 3 monthly IV bone strengtheners.
I do take some vitamins but try to keep to a sensible diet. I haven't had any alcohol for about 3 months as I don't want to upset the pain killers I take. I have to say that there are not many side effects with the drugs apart from the hormone therapy, which does cause fatigue.
I had a quick look at your profile and it is not dissimilar to mine although I guess you are a bit younger having 15 year old twins! The younger and fitter you are will help fight the disease.
Don't be too pessimistic about the future as I have met similar sufferers still jogging along after 15 years.
I agree with your approach to chemotherapy. I did go down that route but gave up after 8 sessions. It did however help suppress the PSA. I have now got to the stage where the medics want me to go back for 6 or 8 sessions of Cabazitaxel which I think has much the same side effects. The trouble is, I feel so well at the moment that I don't want anything to upset the apple cart!
Very best wishes for the future....
Andy
Hi Troxly
There has been quite a bit in the papers over the last couple of years regards immunotherapy.. In fact I think I read a couple of weeks ago about this treatment , it will be more readily available on the NHS , not sure how much though. Good for later stage PC's. I should do as much research as you can and look at cancerresearchuk.org /clinicaltrials for more info.
Steve
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