Advanced aggressive cancer

Hi Suzygal,

I’m so very sorry to hear this sad news especially with your husband being so young. It’s the words you never want to hear. It’s such a terrible shock for both of you and your brain will be reeling.

I had very similar news for my husband in September 21 and he is still here with bone, lymph and lung mets. He has an aggressive ductal adenocarcinoma carcinoma and is doing really really well on Arbiterone and hormone injections. It is incurable but his treatment is working really well and his pain and energy levels are really good compared to before diagnosis. 
My husband is older at 71yr and that’s why they didn’t offer him chemotherapy. I can’t imagine your feelings. It’s so unfair at any age but 56yrs is just not fair. 

What I’m saying is that even at this stage there are life extending treatments available. I don’t want to give you false hope and I am not an oncologist but I’ve been in a situation where I thought we had weeks together… and we are coming up to a year now. 

Sending you lots of love, my heart breaks for you and your family. 

Louli x

My partner similar aggressive form but also castrate resistant mets to bone he's 59 , I totally understand like you we still have a morgage etc , he's on chemo a t m crossing fingers this will work , there's a ladies prostate site , very helpful and people in the ssme situation x

Hi Tina 22,

I’m sorry to hear of another stage 4 case but can you tell me where the ladies prostate site is please?

love,

louli

I’d like to know too please x

I was diagnosed in September 2021 with t4m1n1b gleason score 4+5 spread to lymph nodes and bladder and multiple bones and incurable at the age of 53 i was put on hormone therapy straight away and i since have had 6 rounds of chemo and now having once a week radiotherapy for 6 weeks and on zoledronic acid infusion every 4 weeks which will finish in November.

My life came to a stand still when I was told it has been a really tough 9 months,i have a very good wife and a really good support from the rest of my family which has helped on the numerous low days,since the chemo has finished and i have been  rescanned there is no new growths and the zoledronic acid is helping my bones repair.

I have tried to keep working as a farmer and trying to keep being positive one thing i have learned is to share with people my diagnosis which has helped my brother as he has been diagnosed as well but his is early.

I can't fault the nhs who have got everything going really quickly and my doctor who i saw on the Friday and by the Monday i was having scans my thoughts are with you all and good luck hopefully like me you will have a good response to the treatment 

Suzygal and Louli,

I don't think they have thought about making a Prostate forum for women.

I can see there are more and more wives and partners logging into the forum.

You are more than welcome to share the forum with us men.  It's good to hear things from your prospective.

Personally, I think it is brilliant, I know that some men would never log into something like this.

If ever I can offer any advice (from my own experiences) I will gladly share.

Take care in the heat, it's a scorcher!!

Hi again, there should be a few men in this forum who have been through stage 4, and could offer a good insight for you and your husbands.

Hi suzygal, sorry to read about your husband I have Gleason 9 incurable advanced matast prostate cancer, most of what applies to your husband also applies to me, so fully understand your feelings, have they mentioned the word incurable, if so there is a warm welcome awaiting you both on the incurables site, be aware it's not all doom and gloom, quite the opposite, bunch of fun loving Micky taker's.

All the best Ulls 

Tried to post but it won't let me , possibly because it's another forum 

Hi Tina, just touch the 3 lines at the top, select groups, then down to incurables introduction as new member. Any problems please let me know.

All the best Ulls