Finally got all the details.

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I’m a 3B, 0n. Gleason 4+3 so 7. 21 samples taken in biopsy, 20 show cancer  Bone scan normal 

Currently Cyproterone Acetate 100 mg 3 times a day. On Tuesday having either Decapeptyl or Zoladex, 3 month injection. Probable 2 years on hormone injections. 
Then start 20 radiotherapy sessions daily. Then review if more. 

from what I see everywhere, I’m alive but next 6 months will be hard, as will following 18 months on ht. 

Right now I feel 80% fine then at the drop of a hat I’m in depths of despair for 20% of the time. I worry how I’ll get through and how my family will adjust. 5 weeks ago Wife and I were very close, intimate often. I’ll lose my desire and ability, she won’t. It’s a nightmare and I feel awful for her. 

side effects so far few. Bit puffed out on stairs, feel a bit emotional but don’t know if that’s the tabs I have or just shock reaction! 

  • Hi

    I'm assuming that you aren't on HT for 2 years, and then having RT, as my understanding, and experience, is that they run concurrently.

    The HT can give you the side effects you quote, but not everyone will have them all, or to the same degree. For me, the lack of fitness was one of the worst. Try and keep fit by doing any exercise you used to do. You may not be able to walk ( for example) as far or fast, but every little bit of exercise now will help you once the HT has finished. 

    Regards

    Stuart

    Trying to get fit again!
  • Malnik,

    Just take every day as it comes, try not to think too far into the future, all the "what it's".

    I was like that, this time last year.  After my Radiation treatment finished I had counselling, once a week for nearly 5 months.  That worked wonders for me.  I'm much stronger than before, mentally.  I can talk about anything now, whereas before I would lock everything up.

    As for erectile dysfunction, I have just finished a course at my local Maggie's in Newcastle called "Living with and beyond Prostate Cancer".  That was a great help.  We had a Sex therapist in for a presentation.  She was great.  All of us had the same fears.  She told us,sex isn't just about Erection and Penetration, just being there, show you care, incidental touches.  Your wife will understand.  Tell her what you feel.

    My libido is zero because of the Hormones so I never even think about sex now.  I never thought I'd ever say that.

    Once my Testosterone starts working again, hopefully it will start up.  If not...

    Anyway, just take things easy.

    Steve (SteveCam)

  • Hi Steve

    I am the same position as you but ( by the sounds of it) a little ahead of you. I too am hoping that once my testosterone gets back to normal so will my self drive - who knows?

    Regards

    Stuart

    Trying to get fit again!
  • Stuart,

    If it works,it works.. if not, it's not the end of the world.

    Steve (SteveCam)

  • Sorry, wasn’t clear!!! You are correct. I start radiotherapy in mid September, starting the 3 month jab on Tuesday! I’m told I must be on ht for 3 months prior to radiotherapy. I started the tabs mid June. Thanks for your input. 

  • Thanks. It’s all so hard. The lady who gave us my results was like my aunt. When she got to the sex buy she glossed over, gave us a handout and said random things. For example “ you can get a pump” and moved onto other stuff. It’s like she was embarrassed. Time will tell. 

  • Malnik,

    I'm on Blood-thinners and not suitable for the "pump".  I know that you can get implants, get injections, take Viagra etc.. 

    With me it's going to be wait and see once my body is ready.

    Steve (SteveCam)

  • Hi guy's, I agree with you Steve blood thinners and a pump are a no no, other wise a pump will help with penil shrink, followed by Viagra does work to a certain extent, whilst we might won't to please our partners the lack of desire can put a spanner in the works, anyone considering such action must talk to GP can't get Viagra without doing so.

    All the best Ulls 

  • Ulls,

    I suppose the lack of desire is good in a way.  If I was thinking about it and couldn't do it, that would probably get to me.

    These things are here to test us.

    If it means no more Cancer, it's a no-brainer!

    Steve (SteveCam)

  • Spot on mate 

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