Atlanta Trial

  • 4 replies
  • 171 subscribers
  • 849 views

Just a question to see if anyone on the forum is on the Atlanta Trial ?

I've been in touch with them and they say I am likely to be eligible. My bone Mets are in the spine ribs and pelvis and I like the idea of early intervention to them with surgery and or radiotherapy.

I started radiotherapy to prostate recently but stopped after three sessions only because peeing became dangerously close to zero. I have a stricture on or near the bladder opening that is difficult to successfully operate on and my peeing has been low and retention has been high for years.

For that reason I frankly am scared of taking a risk and going back to prostate radiotherapy.

That's why I'm thinking cryotherapy to the prostate or prostatectomy offered by Atlanta might work better for me ?

Pete

  • Hi Pete

    I don't have the experience you're looking for but I noticed that your post hadn't had any replies yet.

    I can see that you've responded to Bruxist ,who is on the ATLANTA trial, and I've searched and found that  mentioned that their husband was on this a year ago. I've 'tagged' them into my reply to you in the hope that they'll pop on and share their experience with you.

    While you're waiting to for replies it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thanks will do. I will try to do my profile soon.

    Thanks

    Pete

  • Hi Pete

    Yes Latchbrook is correct my husband was on the Atlanta trial.  He had the cryotherapy option but he was randomly assigned to this and didn't get to choose, but the consultant was pleased as he thought it was the best option for him.  He hasn't had any radiotherapy as they said the spread was too extensive for that line of treatment.  The surgeon also opted to remove about 20 lymph nodes while he was anaesthetised.  Happy to answer any questions you have on how the cryotherapy procedure went.  He is just about to have another review but fingers crossed just over 12 months since the op his PSA has been undetectable so far.

  • Thanks very much for your reply.

    It's good news your husband's treatment has been successful. I am waiting to hear back from my consultant about a referral to get onto the trial. If I get to the next stage and have a meeting with Atlanta I will let you know.

    Thanks again and I will come back to you probably with questions if this looks like it is going to move forward to the next stage.