Newly Diagnosed

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Hi All,

          Any advice  and help would be very much appreciated as i have just been diagnosed with prostate cancer, so i am very nervous and anxious, as obviously you think the worse. I am 58 years old, and was told i had cancer in all the six areas of my prostate where they took the biopsies from, but they did say my gleason rating was 6, and my psa was 2.6, so they said the cancer was a slow growing one, and might not develop more, and  they then went through all the options from Active Surveillance to radiotherapy to the full removal of the prostate. they did recommend Active surveillance to start with, but said the decision was mine. I did say to the consultant if he was in my position what would he do, and he would not give me an answer as he said everyone is different, and it was my decision to make, which was not very helpful. So please can i ask anyone else who was diagnosed with a gleason rating of 6 what decision did you make. they did say if i opted for active surveillance i would get PSA screenings every 3 months, a MRI scan every six months, and a biopsy every year. Did anyone else get this advice.

 Any help and advice would be so much appreciated, many thanks

  • Hi Pjay 

    I was similar, 2013 diagnosed, Gleeson 6, PSA 5, went on AS for 4 years,  PSA every 3 months, MRI yearly, only ever had 1 biopsy, I felt MRI tells it all in terms of spread.

    Had Radiotherapy in 2017, all ok so far.

    Your figures are low so AS could be ok for now, as a matter of interest with a PSA of only 2.6 why did they do further investigations. That is a normal figure.

    I think time is on your side so don't get too worked up about  it although I know initially it is a bit of a shock.

    Good luck 

    Steve

  • Hi pjay

    I was diagnosed Gleason 6 in 2017. I chose active surveillance. I've had PSA tests about every 3 months and an MRI once a year but no more biopsies and no treatment yet.

    Best wishes

  • There are two strong arguments in favour of AS;

    • PCa is generally a slow-growing cancer, and yours certainly spears to be.
    • All the curative treatment options for PCa have the potential for pretty awful side effects, so if you can avoid treatment or postpone it, it makes sense.

    There is one argument against: 

    • If the Active Surveillance isn't active enough, what was a curable cancer can become an incurable one.

    So if you elect for AS, be sure you know what PSA level will raise a red flag, be clear what investigations you will have, and when, and make sure it happens.

    YOU need to be the Active in Active Surveillance.

    Good luck, whatever you decide.

    - - -

    Heinous

    If I can't beat this, I'm going for the draw.

    Meanwhile, my priority is to live while I have the option.

  • Hi David, thankyou for you advice, i will make sure i have the PSA tests every three months,  they also told me i would have MRI scans every six months, i will make sure this happens, all the best ,cheers Paul

  • Hi, Thanks for your reply, they have told me they will do PSA tests every three months, MRI scans every six months and another biopsy in a year, i will make sure they do, all the best to you as well, take care Paul

  • Hi, Thanks for your reply. The reason they did a MRI scan and then a biopsy, was because we have a history of prostate cancer in the family, and my uncle sadly died because they told him he was ok with a PSA of 3, but sadly by the time he had a MRI and then biopsy his had already spread,  when i had an MRI they gave me a PIRAD reading of 5 so i had a biopsy and they found cancer in all the six section they took the biopsies from, but thankfully for now it was low grade cancer, and they told me that Active Surviellance was the best option for now, so fingers crossed it will stay slow growing for many years to come. Thanks for your kind words, all the best Paul